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Psoriasis Club › HealthHealth Boards › Introductions v
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just diagnosed

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just diagnosed
svp3058 Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 134
Threads: 3
Joined: Nov 2016
Gender: Female
Location: canada
Treatment: not yet
#101
Wed-23-11-2016, 02:52 AM
(Tue-22-11-2016, 11:44 AM)Bill Wrote: Well done, svp. It will be very interesting to read of your progress.

All the best,

Bill

Sure Bill, i will update here, not started yet - it just arrived and needs to be installed, probably on the upcoming weekend.
The light should be taken every other day, and it  make take about a month and a half to see any improvements.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#102
Wed-23-11-2016, 02:58 AM
When I used to have the treatment at the hospital, I got good results earlier than that ....I wish you luck with it and wait for your updates Thumb
Jim
svp3058 Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 134
Threads: 3
Joined: Nov 2016
Gender: Female
Location: canada
Treatment: not yet
#103
Wed-23-11-2016, 03:05 AM
(Tue-22-11-2016, 15:20 PM)Kat Wrote:
(Tue-22-11-2016, 03:24 AM)svp3058 Wrote:
(Tue-22-11-2016, 02:17 AM)Kat Wrote: Yes, be careful with the home treatment of light therapy.  Hopefully you have a doctor that can help you set up a treatment schedule based on what you purchased?  It is really a shame that there is not one close enough for you to go to.  I do understand why you are going that route, just be careful.

Sometimes you just have to take things one day at a time and keep on moving forward.  Remember we are all on your side in this hoping you find a treatment that helps you, and this is a great place with people willing to listen on those not so great days.  Smile

What i can say - we spent a lot of time searching and learning about home PS treatment before making this tough decision that cots us a lot of money. We will be very careful no doubt (physics is in our background, so we understand how it works more or less)...
I also mentioned in above threads - I got a panic attack in that cabin in medical facility - doors are  locked, and lamps are frying you alive;
what is if anything goes wrong with the device - room is locked, cabin is locked... and no one can hear you...
At home i am getting three panels that allow me to get out without any fear to remain locked in frying booth :((( It was a real panic attack, no joke, so I prefer to have my own control.
Instructions are part of the package, I am not scared to be overcooked Smile)) - It is PS treatment oriented lamps made in Canada.
Thank you so much for your reply!

It sounds like you definitely know what to expect and have done your research  Thumb   I wouldn't have liked locked doors either!  I could always open the door with the light therapy I had, pretty sure if they locked me in I wouldn't have gone back!  

Good luck and keep us posted on how it goes.  Smile
ye, locked doors scared me - doors also had lamps (it was rounded cabin, so no way to open doors), and it sounded like they were being locked...Knight mare!
I will post my updates here as soon as i have any, hope to start it soon- the thing should be installed this weekend and i start my therapySmile)).
Thanks a lot for your Good Luck wishes, i wish me luck too - soooo much....
svp3058 Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 134
Threads: 3
Joined: Nov 2016
Gender: Female
Location: canada
Treatment: not yet
#104
Wed-23-11-2016, 03:21 AM
(Wed-23-11-2016, 02:58 AM)jiml Wrote: When I used to have the treatment at the hospital, I got good results earlier than that ....I wish you luck with it and wait for your updates  Thumb
Jim
sounds optimistic Smile - i still have VERY terrible condition, i just want to see me at least close to normal, so i would not have to hide my hands...
I will update here as soon as i have any results.
I don't know, we just did what we could in our circumstances , we'll see...and try...and hope...
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,968
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#105
Wed-23-11-2016, 12:27 PM
SVP don't hesitate to start a new thread about it.

It's your choice, but as this is your intro thread it may get missed by some of our readers. Also your info could help others, plus it will be a better way of monitoring your progress.

I would suggest a new thread in either Psoriasis And Psoriatic Arthritis Topics (as it's not prescribed).

Or you may prefer it viewable for members with ten posts only in [Group Specific]

But like I say it's up to you, you ar under no obligation. I'm just suggesting it as it may get missed in this thread.

Fred.

*This thread is closed. All introductions are closed after 90 days to save confusion.
You are welcome to start new threads in any other sections of your choice.
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