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Snowowl Offline
Newbie


Posts: 2
Threads: 2
Joined: Oct 2016
Gender: Female
Location: Western USA
Treatment: Tried Methrotrexate. Preparing to start Humira
#1
Thu-06-10-2016, 11:02 AM
First off, I'd like to say that I feel happy I can type out one of my "Dear Diary" entries I type on Word 2016 (then erase immediately afterward) here and maybe get feedback. I always wrote about my psoriasis and how it affects my life and life decisions. 

This feels weird. I'm sorry but I think it would be easier if I write how i'm used to. Be warned that I am not a grammar genius or a writer. 

Dear Diary,
     I have psoriasis. Plaque psoriasis. I was diagnosed in 2015. I didn't know it then, but in 2009, during the pregnancy of my third, and last child, I noticed a 'spot' on the back of my right calf. It was about the size of a dime. I didn't know what it was. I used make-up to hide the spot, thinking it was a part of pregnancy and would go away. It didn't go away. 

    I don't know when it happened. I was so unaware of what I had. In 2013 I had small strips of white 'scabs' on my shins and smalls blotches on my elbows. I found out through Googling that I had psoriasis. I was devastated. Little did I know that that was nothing compared to what I have now. And right now I feel blessed that I have learned how much worse my condition could be but is not. 

    Right now I have psoriasis on my scalp (no hair loss), my elbows are covered in plaques with dime to quarter sized spots on both arms (I'll NEVER go out in public uncovered),worse, my legs covered almost 90% (my biggest issue, explain later on), I have a lot of pencil eraser spots on my back, and i have a small spot developing on my face. 

    My legs. I used to love wearing capris. Back then, my self conscious issues were the size of my calves. Now they're covered in thick, yellow-gray-silvery plaques that itch horrendously. I've scratched myself soooo raw once that I caught a staph infection which led to sepsis then necrotizing fasciitis. I was in I.C.U. and the amputation of my leg was very real. Luckily, I still have my leg. 

    Right now, I'm at a loss for what I can do to help me live a more satisfying life. I've tried Triaminocolone, Clobetasol, Methotrexate, and now I'm preparing to try the Humira pen injections. From what I've read, they're not so effective on plaque psoriasis and that they HURT. I am so nervous. 

    Also, I should add that I have PCOS and have recently been diagnosed with type 2 diabetes. 

    I feel so defeated. Beaten. I couldn't take another blow...  but maybe I could. 

    Ugh... I do not know. But I'm pretty sure I will not give up.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,108
Threads: 3,898
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Thu-06-10-2016, 11:18 AM
Hello Snowowl  Welcome to Psoriasis Club.

First off, no one here will pull you up for your grammar or spelling etc. If they do then let me know as I'm rubbish at it myself and will soon have words with the offender.

Nothing wrong with putting it down like a diary. We have some members that keep a journal in the members only section (you can't however read or post there till you have made 10 posts) and it's a good way keeping track of things.

Humira can work very well for some so it's worth a go. As for hurting, I've never found they hurt that much. The injection is only just under the skin and once you are used to it it is a quick simple process. Some however do say the "Pen" type can hurt a bit, but I always use the syringe type so couldn't comment.

Tips for the injections:
#1 Get it out of the fridge for around 20 minutes before doing the shot.
#2 Numbing the area first with ice could help.
#3 Deep breathing.
#4 And if you do go for the syringes, stab it in quick as opposed to pushing it in slowly. (But with the Pen type that won't apply)  

Once you have made ten posts you can start your own journal to keep your diary notes if you wish. And you are always welcome to start a thread in Prescribed Treatments For Psoriasis if you wish too.

Regards.

Fred.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Thu-06-10-2016, 11:30 AM
(Thu-06-10-2016, 11:02 AM)Snowowl Wrote: First off, I'd like to say that I feel happy I can type out one of my "Dear Diary" entries I type on Word 2016 (then erase immediately afterward) here and maybe get feedback. I always wrote about my psoriasis and how it affects my life and life decisions. 

This feels weird. I'm sorry but I think it would be easier if I write how i'm used to. Be warned that I am not a grammar genius or a writer. 

Dear Diary,
     I have psoriasis. Plaque psoriasis. I was diagnosed in 2015. I didn't know it then, but in 2009, during the pregnancy of my third, and last child, I noticed a 'spot' on the back of my right calf. It was about the size of a dime. I didn't know what it was. I used make-up to hide the spot, thinking it was a part of pregnancy and would go away. It didn't go away. 

    I don't know when it happened. I was so unaware of what I had. In 2013 I had small strips of white 'scabs' on my shins and smalls blotches on my elbows. I found out through Googling that I had psoriasis. I was devastated. Little did I know that that was nothing compared to what I have now. And right now I feel blessed that I have learned how much worse my condition could be but is not. 

    Right now I have psoriasis on my scalp (no hair loss), my elbows are covered in plaques with dime to quarter sized spots on both arms (I'll NEVER go out in public uncovered),worse, my legs covered almost 90% (my biggest issue, explain later on), I have a lot of pencil eraser spots on my back, and i have a small spot developing on my face. 

    My legs. I used to love wearing capris. Back then, my self conscious issues were the size of my calves. Now they're covered in thick, yellow-gray-silvery plaques that itch horrendously. I've scratched myself soooo raw once that I caught a staph infection which led to sepsis then necrotizing fasciitis. I was in I.C.U. and the amputation of my leg was very real. Luckily, I still have my leg. 

    Right now, I'm at a loss for what I can do to help me live a more satisfying life. I've tried Triaminocolone, Clobetasol, Methotrexate, and now I'm preparing to try the Humira pen injections. From what I've read, they're not so effective on plaque psoriasis and that they HURT. I am so nervous. 

    Also, I should add that I have PCOS and have recently been diagnosed with type 2 diabetes. 

    I feel so defeated. Beaten. I couldn't take another blow...  but maybe I could. 

    Ugh... I do not know. But I'm pretty sure I will not give up.
Hi Snowowl  (love that name)  Welcome to what I consider to be the friendliest psoriasis forum on the planet, all you will find here is personal experiences of other sufferers .

You will also get unbiased views on the different treatments available .......we are all friendly and will support each other through the bad times....I've had plenty of help here myself ....and there is usuallly someone nearby although non of us are here all the time,

I'm sorry you feel defeated, which is a perfectly understandable feeling with this disease, I'm sure most of us have felt the same....I'm glad to read that you won't give up. There is so much help available out there for the treatment of the disease and non of us should ever get to feel it's not worth trying.....

Sorry to hear about the diabetes and I hope you have that under control.  Thumb

I hope the Humira works for you ....it has a good track record and if it doesn't work ( which it should) tell your dermatologist and get changed on to another ......there are several others that work in different ways and one will be your saviour....let's hope it's Humira

If you ever feel low just come and chat [Group Specific]

Or have a browse through the off topic section [Group Specific]
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,108
Threads: 3,898
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#4
Thu-06-10-2016, 11:35 AM
I'll close this thread as you seem to have two going in introductions.

The other one can be found here: Looking for support

*This thread is closed. All introductions are closed after 90 days to save confusion.
You are welcome to start new threads in any other sections of your choice.
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