[split] Low Dose Naltrexone

[Bill]

This might be a better spot to continue..........

I guess if I were starting a new treatment I would want to set some parameters by which to evaluate it. Sticking with a treatment for six months waiting for an effect is of no interest to me. My disease has been severe and unforgiving, and I dont see myself having such patience. Fred's reference to the WHO report on psoriasis also outlined a case of unemployment and homelessness from uncontrolled disease, so the consequences of non-treatment are not trivial.

I would also want to see some evidence of effectiveness. I believe there was a pilot study of ldn in Glasgow at the end of 2013; A three month trial. No results released. My guess is that it did bugger all.

[Closed]

*This members account has been closed for Trolling.

If anyone would like to know more about LDN, I created a thread for just that purpose. I feel it is a valuable treatment option to anyone with psoriasis or PsA.

The thread is located under introductions, titled "Hello, 50+ LDN user"

I would post a link to it, but don't think it would be allowed. There is a search box, top right on the header.

Anyone interested in knowing more on LDN, I suggest you take a look. The thread has been closed, but still contains valuable information.

I came here to spread the news of LDN to those who suffer as I do, in the hope that it might help others. I have always been appreciative of others helping me online with valuable information, and just thought if I ever had the chance, I would return the favor. I am a member to a number of health forums, and have been posting all I can, involving the facts, history and scientific evidence, showing the possible benefits of this low dose, safe drug. Unfortunately, I'm not allowed to post much of the relevant info I have on LDN here, and I respect the owner's wishes on that. It is his site, and he runs it how he sees fit, to keep this a safe environment.

But since I have done as much as I could, in alerting the members of the Psoriasis Club, on the benefits of LDN, and in the interest of everyone involved, I think my time here has elapsed. I certainly didn't come here to win anybody over,.. just wanted to leave some valuable information to fellow psoriasis and PsA sufferers.

Good luck to all at the Psoriasis Club and I wish you all the best.

Regards,

[Bill]

Hi,

The best you can do is to document your treatment. You might also make a treatment plan for yourself. Sticking with ldn for six months come hell or high water is not a treatment plan. What reduction in your disease would you reasonably expect in a given time frame? What time frame would see you quit in the absence or lack of effect? These are pertinent questions to answer when pursuing a new treatment.

Your will receive nothing but help and support here.

[jiml]

If anyone would like to know more about LDN, I created a thread for just that purpose. I feel it is a valuable treatment option to anyone with psoriasis or PsA.

The thread is located under introductions, titled "Hello, 50+ LDN user"

I would post a link to it, but don't think it would be allowed. There is a search box, top right on the header.

Anyone interested in knowing more on LDN, I suggest you take a look. The thread has been closed, but still contains valuable information.

I came here to spread the news of LDN to those who suffer as I do, in the hope that it might help others. I have always been appreciative of others helping me online with valuable information, and just thought if I ever had the chance, I would return the favor. I am a member to a number of health forums, and have been posting all I can, involving the facts, history and scientific evidence, showing the possible benefits of this low dose, safe drug. Unfortunately, I'm not allowed to post much of the relevant info I have on LDN here, and I respect the owner's wishes on that. It is his site, and he runs it how he sees fit, to keep this a safe environment.

But since I have done as much as I could, in alerting the members of the Psoriasis Club, on the benefits of LDN, and in the interest of everyone involved, I think my time here has elapsed. I certainly didn't come here to win anybody over,.. just wanted to leave some valuable information to fellow psoriasis and PsA sufferers.

Good luck to all at the Psoriasis Club and I wish you all the best.

Regards

It's always a good idea to lead people to the thread you want them to see with an internal link which is just pointing to another thread here which is encouraged
Your thread is Hello, 50+ LDN user for anyone who wants to read it

[Caroline]

Well done, I certainly like that you pointed us to LDN.
Those who will feel it interesting certainly now have a starting point.
And as Bill suggests, I you feel like recording your own experiences over time, I would like to read them.

See you around.

[Turnedlight]

Hi there!

I'm very confused over this ldn stuff, there's been a lot of talk about how good it should be but no one actually saying it's helped them personally

From your post, it sounds like it's not doing anything yet? I find that's one of the biggest problems when you're given drugs, the derm expects them to work but you aren't given much info on what should happen and how quickly.

I look forward to hearing more about ldn, if it does work and if it really does have few side effects then it sounds great. So do keep us posted!

[Closed]

I was just reading an article on whether LDN is bogus or cutting edge science, and the author went on to say how it's in the early stages of preliminary scientific investigation, and how the evidence so far doesn't warrant clinical use. And he goes on bashing it as some sort of pseudo science.

But then you read the 180 comments that follow the article, that tell a different story. By people who have been helped by LDN. I just love articles like that. It's like they were forced to come forward to show the author he's full of it. And the author's view is generally the opinion most of mainstream has. One comment in particular really hit home. It was of a doctor, who applauded the authors conclusions, and patted him on the back. But as he goes on, he states due to his dire health, he himself used LDN and had great results from it. And his reasoning was,...  This is part of my own tactical approach to tackling what feels like an impossible situation. Boy, you just can't make this stuff up.

True, it has not been thoroughly researched, or even significantly. But LDN is being used clinically, is showing benefits, and there are thousands testimonials by doctors and patients to prove it.

You're just not looking hard enough Turnedlight. No offense.

[mataribot]

I do not mean rude or anything, but the majority of testimonials are paid advertisements. Until the drug is researched based or at least makes it through one phase III trial, I'm not going to try it.

[Closed]

I do not mean rude or anything, but the majority of testimonials are paid advertisements. Until the drug is researched based or at least makes it through one phase III trial, I'm not going to try it.

 
To each, their own.

Phase 3 will never happen. No one would ever foot the bill for a large trial, on a drug that lost it's patent.

Paid testimonials? For an off label pharmaceutical that costs pennies on the dollar?

[Fred]

The majority of testimonials are paid advertisements.

Yep I often get people contacting Psoriasis Club offering to give testimonials on other review sites for a small fee (usually from India and very cheap) as you can imagine they don't get an answer back from me.

All testimonials should be taken with a pinch of salt and it's only peoples personal experiences that hold any worth in my opinion.