I'm a new member

[mataribot]

I'm sure the people that have been on here a while do not want newbie repeat questions    

Like Kat said if it's been asked we can point you to some threads that can help. But we do encourage our members to just ask away, so don't worry if it's already been said we don't expect you to read your way through almost 57,000 posts to find something.

Plus we are all different and as we get more members you will get more feedback on your questions, so just start a thread and ask.

Hello and welcome. there isn't any issues with repeat questions just like Fred said!

[Caroline]

Fred,

The coconut oll, is that the normal oil you also bake with?

Caroline.

[Fred]

Fred,

The coconut oll, is that the normal oil you also bake with?

Caroline.

Yes you can cook with it or eat it raw. *Don't confuse it with the Milk which is often used in Curry. And don't be tempted to buy a cheap one, you need a good quality virgin coconut oil to work. It's like a wax candle when cold and will melt on body contact.

Coconut Oil

[Yabi]

Well I got test results back this past friday. My doctor spent a while on phone with me for which i was thankful. I have pityriasis rubra pilaris. She says she has not seen it in 10 years. From what i read its right in there with psoriasis and even similar treatments. She called in a topical for me called triamcinolone 0.1% cream that seems to help with redness and itching. Topicort sucked ! She is giving me a choice on treatment we will discuss this weeks appointment. UV light 3 times a week or soriatane which i believe is a trade name for acitretin. She asked me to read on this drug for its side effects before I choose. Its been a nasty ride. My legs are red an skin is coming off an upper body is covered red withe little bites with flakey skin. This past week ive had an achy feeling along with itching burning sensation. I sleep alot to. Anyways, am I throwed out of the club?  I understand if so. I found a support group for PRP but no forum. Thanks everyone for checking on the thread and any kind of knowledge on the disease. Oh, it can run its coarse in 3-5 years an act like I may never had it or it can pop in and out of remission. I would like to clear up asap an then maybe backoff to a more non-invassive treatment.

[Yabi]

Also known as "Devergie's Disease".

[Caroline]

I will go checking that on the Internet what it exactly is.

There are no rules for being thrown out of the club other than bully others or trying to sell something. I you feel comfortable with us, just do stay. Together we call always support each other even if it is being supportive on mental level and/or have a chat in the off topic section, which is crowded anyway with the members.

[Yabi]

It is also referred to as "Lichen Psoriasis" so im still legal in the club. Im jus playin

---

EDIT By Fred: Mention of website removed.

[jiml]

Well I got test results back this past friday. My doctor spent a while on phone with me for which i was thankful. I have pityriasis rubra pilaris. She says she has not seen it in 10 years. From what i read its right in there with psoriasis and even similar treatments. She called in a topical for me called triamcinolone 0.1% cream that seems to help with redness and itching. Topicort sucked ! She is giving me a choice on treatment we will discuss this weeks appointment. UV light 3 times a week or soriatane which i believe is a trade name for acitretin. She asked me to read on this drug for its side effects before I choose. Its been a nasty ride. My legs are red an skin is coming off an upper body is covered red withe little bites with flakey skin. This past week ive had an achy feeling along with itching burning sensation. I sleep alot to. Anyways, am I throwed out of the club?  I understand if so. I found a support group for PRP but no forum. Thanks everyone for checking on the thread and any kind of knowledge on the disease. Oh, it can run its coarse in 3-5 years an act like I may never had it or it can pop in and out of remission. I would like to clear up asap an then maybe backoff to a more non-invassive treatment.

Hi Yabi of course you must stay with us, the only members that get shown the door , as Caroline has said are bullies and spammers ........there are so many similarities of treatment and possibly we have members that have got PRP And have been misdiagnosed, it's an easy mistake for us or a doctor to make
I had a quick look at the support group it looks like something else you should belong to an they will know what's going on in the PRP world

But do stay you are more than welcome

[Yabi]

Should i get out of introduction and start a thread on PRP? Yes Jimi i was thinking the same thing on diagnosis and all for members.

[jiml]

Hi I know you have done your research but this might be something of interest

Quote:

---

There is no cure for PRP. Treatment consists of relieving the symptoms that accompany PRP. Your doctor may prescribe one or more of the following treatments to relieve symptoms:

topical creams that contain urea or lactic acid
oral vitamin A (effectively reduces or relieves symptoms in one-third of patients, according to GARD)
oral retinoids like isotretinoin or acitretin (retinoids are medications that slow the growth and shedding of skin cells)
biologics (medications that affect the immune system, such as Humira, Enbrel, Remicade)
ultraviolet light therapy, which is usually prescribed in combination with Psoralen (a medication that makes you less sensitive to the sun) and a retinoid

So just like psoriasis no cure, but effective treatment available