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Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
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Anyone here on Otezla?

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Anyone here on Otezla?
Munsterace Offline
Novice


Posts: 9
Threads: 0
Joined: Jan 2017
Gender: Male
Location: Ireland
Psoriasis Score: 11
Treatment: Diet & Creams
#21
Tue-17-01-2017, 11:23 AM
(Tue-17-01-2017, 11:05 AM)jiml Wrote: Hi Munsterace. I can't help with your question but  Welcome to the forum, I hope you find an answer here
Have a good look through the prescribed treatment boards in case you cant get it easily. There are many other treatments available

Hopefully alittlenonsence will get a notification of your reply and answer you, although she hasn't been here for over a year

Enjoy your time with us you will find us a friendly group of fellow sufferers
Jim

Thanks jiml, only recently developed psoriasis but it is in my family. Finding this forum useful already especially tips on diet.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#22
Tue-17-01-2017, 11:37 AM
(Tue-17-01-2017, 11:23 AM)Munsterace Wrote:
(Tue-17-01-2017, 11:05 AM)jiml Wrote: Hi Munsterace. I can't help with your question but  Welcome to the forum, I hope you find an answer here
Have a good look through the prescribed treatment boards in case you cant get it easily. There are many other treatments available

Hopefully alittlenonsence will get a notification of your reply and answer you, although she hasn't been here for over a year

Enjoy your time with us you will find us a friendly group of fellow sufferers
Jim

Thanks jiml, only recently developed psoriasis but it is in my family. Finding this forum useful already especially tips on diet.

Yes the site is packed with loads of information and members experiences, you could look at the treatment I'm on as that is also available in Ireland we have a few Irish members on it see here Fumaderm
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River60 Offline
Skin Like a Dragon


Posts: 83
Threads: 6
Joined: Jan 2017
Gender: Female
Location: Nova Scotia
Psoriasis Score: 48
Psoriatic Arthritis Score: 11
Treatment: Stelara
#23
Wed-29-11-2017, 00:34 AM
I started it one week ago (Nov 21, 2017) and so far nothing to complain about in the way of headaches or other possible side effects.  

The good news is there is already a slight improvement and the plaques seem to be not scaling as much.  I've got some that are so large and bad that it is hard to tell.  I pretty much don't have any area on my body that is not heavily engaged.  Scalp, all of my limbs, ears, all of my nails and toe nails.  It's really bad.  I'm in Canada by the way and it took a while to get my insurance provider to pay for it but they finally are.  They even deliver it to my door.   Clap

I'm so very hopeful so far.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,478
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#24
Wed-29-11-2017, 08:45 AM
(Wed-29-11-2017, 00:34 AM)River60 Wrote: I started it one week ago (Nov 21, 2017) and so far nothing to complain about in the way of headaches or other possible side effects.  

The good news is there is already a slight improvement and the plaques seem to be not scaling as much.  I've got some that are so large and bad that it is hard to tell.  I pretty much don't have any area on my body that is not heavily engaged.  Scalp, all of my limbs, ears, all of my nails and toe nails.  It's really bad.  I'm in Canada by the way and it took a while to get my insurance provider to pay for it but they finally are.  They even deliver it to my door.   Clap

I'm so very hopeful so far.

Hi River,

Well that sounds positive, that you are seeing and feeling a difference. Hopefully that will continue and you will have more relieve.
Do keep the side effects at bay. Big Grin

Did your doc mention anything on vitamin D ? Canada is not the country where you can catch lots of vit. D from sunbathing I guess, certainly not in this times. You may add it to your diet.
Quote
River60 Offline
Skin Like a Dragon


Posts: 83
Threads: 6
Joined: Jan 2017
Gender: Female
Location: Nova Scotia
Psoriasis Score: 48
Psoriatic Arthritis Score: 11
Treatment: Stelara
#25
Wed-29-11-2017, 16:14 PM
(Wed-29-11-2017, 08:45 AM)Caroline Wrote:
(Wed-29-11-2017, 00:34 AM)River60 Wrote: I started it one week ago (Nov 21, 2017) and so far nothing to complain about in the way of headaches or other possible side effects.  

The good news is there is already a slight improvement and the plaques seem to be not scaling as much.  I've got some that are so large and bad that it is hard to tell.  I pretty much don't have any area on my body that is not heavily engaged.  Scalp, all of my limbs, ears, all of my nails and toe nails.  It's really bad.  I'm in Canada by the way and it took a while to get my insurance provider to pay for it but they finally are.  They even deliver it to my door.   Clap

I'm so very hopeful so far.

Hi River,

Well that sounds positive, that you are seeing and feeling a difference. Hopefully that will continue and you will have more relieve.
Do keep the side effects at bay.  Big Grin

Did your doc mention anything on vitamin D ? Canada is not the country where you can catch lots of vit. D from sunbathing I guess, certainly not in this times. You may add it to your diet.
Yes, it can be gloomy this time of year.  I was never advised to take vitamin D but I've been taking it myself for the last year.  Summers here are very nice right into October but I'm afraid gardening season is completely gone now so unless I go for light treatments I'm pretty much a mushroom.  Thanks for the reply and I'll keep posting on my response to Otezla, but so far I'm pretty impressed.  

Just for background I cannot take any of the other drugs due to liver issues and high blood pressure.  I did Dovobet and light treatments for almost a year and there it barely kept the plaques under control.  It got so bad my husband bought me a new Dyson stick vacuum to run around the house with... snicker
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#26
Wed-29-11-2017, 18:17 PM
(Wed-29-11-2017, 00:34 AM)River60 Wrote: I started it one week ago (Nov 21, 2017) and so far nothing to complain about in the way of headaches or other possible side effects.  

The good news is there is already a slight improvement and the plaques seem to be not scaling as much.  I've got some that are so large and bad that it is hard to tell.  I pretty much don't have any area on my body that is not heavily engaged.  Scalp, all of my limbs, ears, all of my nails and toe nails.  It's really bad.  I'm in Canada by the way and it took a while to get my insurance provider to pay for it but they finally are.  They even deliver it to my door.   Clap

I'm so very hopeful so far.

Hi River great to hear that you aren't experiencing any side effects from otezla' .....but are already seeing improvements, I hope it will give you clearance soon
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