Newbie Hellosimon

[Hellosimon]

Hello

I've just joined the site and I thought I'd introduce myself. 

I was diagnosed around five years ago and have tried a variety of topical treatments, varied diets and have very recently been prescribed acetretin so I'm hoping for positive results.

The psoriasis* is spreading pretty much everywhere and it has knocked my confidence for six. My partner is really supportive and I owe so much to her. I guess I'm in a similar if not exact situation to many other members here.

I've joined as I would like to hear others stories regarding treatment, diet and how they get on with smoking and drinking. I smoke and drink but not in any particular quantity.

*I'm a little funny about calling psoriasis 'my' psoriasis. I don't own it. It doesn't belong to me, I didn't ask for it therefore it is not mine. I hope everyone is ok with me using this terminology and in my posts, I will be referring to it as exactly that. 

I look forward to discussing everything psoriasis with you all and I will keep the forums posted with progress and personal feelings about it, and the treatment.

I am currently having a lovely time in Menorca whilst I am really enjoying (if a little paranoid) about getting my skin out in the sun so if I don't respond immediately, please don't be put off. I will respond to all posts and I hope to play a positive part as a  community member on this board. 

Much love, Hellosimon.

[Fred]

Hello "HelloSimon"   to Psoriasis Club.

We have afew members on Acitretin if you use the search facility from the menu bar you will find a few post that may be worth reading (*you need to be logged-in to use search)

I'm the same I try not to refer to it as "My" I class it as a negative to do so, and anyway I don't mind sharing.  

Yes our loved ones are the ones we sometimes take for granted, but it is a great help if we have some that will support even though they can't understand. That is where Psoriasis Club comes in, we can't replace your loved ones but we know how you feel.

Please don't hesitate to start a thread in Prescribed Treatments For Psoriasis about your journey with Acitretin if you wish.

Regards.

Fred.

[jiml]

Hello

I've just joined the site and I thought I'd introduce myself. 

I was diagnosed around five years ago and have tried a variety of topical treatments, varied diets and have very recently been prescribed acetretin so I'm hoping for positive results.

The psoriasis* is spreading pretty much everywhere and it has knocked my confidence for six. My partner is really supportive and I owe so much to her. I guess I'm in a similar if not exact situation to many other members here.

I've joined as I would like to hear others stories regarding treatment, diet and how they get on with smoking and drinking. I smoke and drink but not in any particular quantity.

*I'm a little funny about calling psoriasis 'my' psoriasis. I don't own it. It doesn't belong to me, I didn't ask for it therefore it is not mine. I hope everyone is ok with me using this terminology and in my posts, I will be referring to it as exactly that. 

I look forward to discussing everything psoriasis with you all and I will keep the forums posted with progress and personal feelings about it, and the treatment.

I am currently having a lovely time in Menorca whilst I am really enjoying (if a little paranoid) about getting my skin out in the sun so if I don't respond immediately, please don't be put off. I will respond to all posts and I hope to play a positive part as a  community member on this board. 

Much love, Hellosimon.

Hi hellosimon    to the forum I'm glad you have joined and want to keep us posted on your progress. You will get a few replies from other Acetretin users, we have several on here some join in others choose to just read the posts, whichever you choose is fine but it's always good to read personal experiences.

On here we are all just sufferers of psoriasis sharing, and supporting  each other through the good and bad times .... I look forward to reading your journey and hopefully meeting you in the active off topic section  

[Caroline]

Hi Hellosimon,

Welcome to "our" forum. at least if you get around over here that is how it feels at a certain moment.
Please do enjoy yourself over here, there is always someone around.

Looking forward to see your posts.

Caroline.

[Kat]

Welcome Hellosimon!

I had good results with Acitretin and so have some others on this forum. It can take "around" six weeks to notice any improvement, but once you start to notice that things are improving, it works fairly quickly (at least that is how it was for me.)

I am probably one who has said "my psoriasis is better/worse" and never really thought about it. I certainly don't want to own it either! Although I'll probably still be guilty of saying it that way meaning the psoriasis that is currently affecting me is this or that, but it does make one think.

Glad you found the forums here!

[Grizzly Bear]

Welcome Simon.

I understand what you say about psoriasis, it's ours, we never asked to get it but we've got it.

Where's menorca ? Spain ??

We have high winds and rain here lol.

If it's sunny there, enjoy it but please bring some sunshine here please lol

GB

[Hellosimon]

What a lovely welcome, thank you. 

I had a plaque on my upper right shoulder that was the size of a bass players thumb (I'm a bass player and my thumbs are pretty big) and has completely disappeared. I don't know whether it's the sun, Dovobet or acetretin that has done it but I'm quite pleased about it. 

Over the coming days I plan to share photos of my lower back where the plaques are at their worst and I'm hoping that over a period of posts, an improvement can be seen. It might be quite interesting from a personal perspective too as I don't get to see my back very often.

Yes, menorca is in Spain. A little island in the Balearics about the size of the Isle of Wight (I think) and they have seven different words for 'wind'. Beautifully sunny; today was 27c and yesterday was 34. Awful really! I'll do my best to bring some back.

Thank you for a warming welcome to the board and I look forward to sharing my story with you all soon.

[Kat]

Pictures are a great way to document where you start and how well treatment is working. I look forward to following your journey.

Spain... I'm envious. I lived in Spain for 3 years back in the 80's and absolutely loved it!

[fingers]

Hi Simon! I am also new to the forum and have been on Acitretin for 4 weeks so far!  not a great deal happening yet there are pictures in my Acitretin journey post!!....people on here seem very nice and helpful! Good luck with your treatment! :-)

[Fiftyplus]

Hello

I've just joined the site and I thought I'd introduce myself. 

I was diagnosed around five years ago and have tried a variety of topical treatments, varied diets and have very recently been prescribed acetretin so I'm hoping for positive results.

The psoriasis* is spreading pretty much everywhere and it has knocked my confidence for six. My partner is really supportive and I owe so much to her. I guess I'm in a similar if not exact situation to many other members here.

I've joined as I would like to hear others stories regarding treatment, diet and how they get on with smoking and drinking. I smoke and drink but not in any particular quantity.

*I'm a little funny about calling psoriasis 'my' psoriasis. I don't own it. It doesn't belong to me, I didn't ask for it therefore it is not mine. I hope everyone is ok with me using this terminology and in my posts, I will be referring to it as exactly that. 

I look forward to discussing everything psoriasis with you all and I will keep the forums posted with progress and personal feelings about it, and the treatment.

I am currently having a lovely time in Menorca whilst I am really enjoying (if a little paranoid) about getting my skin out in the sun so if I don't respond immediately, please don't be put off. I will respond to all posts and I hope to play a positive part as a  community member on this board. 

Much love, Hellosimon.

Hello H,

I am new to the site as well, and I have found the stuff people know about P on here is amazing...ive had P for going on 50 years.  It started off very mild just little pieces on my elbows...but I have never tried half the things the other members have.

As for me , you can use any terminology you want...the words are yours, so use them.

Best of luck on the site, and enjoy your hols.

Fifty