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Newbie lcurry92

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Newbie lcurry92
lcurry92 Offline
Newbie


Posts: 3
Threads: 1
Joined: May 2015
Gender: Female
Location: England
Treatment: Fumaderm
#1
Fri-01-05-2015, 14:40 PM
Hi everyone, I've just registered and not 100% sure how things work on here, i'm looking for peoples experiences using Fumaderm? I'm on it and have been for about a year and suddenly i'm getting bad side effects! and to add insult to serious injury they no longer seem to be working!!! I'm on the max dose (6 tablets per day) Anyone have the same problem? Thanks! x
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#2
Fri-01-05-2015, 14:59 PM
Hi I'm sorry I'm out at the moment but will reply later I'm on fumaderm as well Thumb
lcurry92 Offline Author
Newbie


Posts: 3
Threads: 1
Joined: May 2015
Gender: Female
Location: England
Treatment: Fumaderm
#3
Fri-01-05-2015, 15:06 PM
No problem! Thanks for replying at least i know ive done something right!  Big Grin
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,501
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#4
Fri-01-05-2015, 15:10 PM
Hi Lcurry92,

Welcome to psoriasisclub, a group of fellow sufferers with psoriasis.

There is a lot to find on Fumaderm on the forum. No doubt Jim will come back to you.
I am also on DMF, but not on Fumaderm.

In order to make things easier for Jim, can you tell a bit more?

What kind of side effects did you get?
How severe are they?
Did you ever have it before?
What is the serious injury you have?
How often have you been to the dermatologist?
Is the presciption done according to a slow protocol?
How often was your blood measured? If you are on it for a year now, that should at least have been 4 times in my opinion.

Hope to read more from you.

Caroline.
Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#5
Fri-01-05-2015, 15:16 PM
Welcome! This is a good place to ask questions Smile I'm not on Furmaderm so can't help but you'll get information from others who can.
lcurry92 Offline Author
Newbie


Posts: 3
Threads: 1
Joined: May 2015
Gender: Female
Location: England
Treatment: Fumaderm
#6
Fri-01-05-2015, 15:28 PM
(Fri-01-05-2015, 15:10 PM)Caroline Wrote: Hi Lcurry92,

Welcome to psoriasisclub, a group of fellow sufferers with psoriasis.

There is a lot to find on Fumaderm on the forum. No doubt Jim will come back to you.
I am also on DMF, but not on Fumaderm.

In order to make things easier for Jim, can you tell a bit more?

What kind of side effects did you get?
How severe are they?
Did you ever have it before?
What is the serious injury you have?
How often have you been to the dermatologist?
Is the presciption done according to a slow protocol?
How often was your blood measured? If you are on it for a year now, that should at least have been 4 times in my opinion.

Hope to read more from you.

Caroline.


I have vomiting, cramping and feeling nauseous for days at a time. I'd say moderately severe on a bad day i find it difficult to eat anything which is horrible because you have to take the tablets with food!
The "add insult to serious injury" is only a saying, i dont have any serious injury sorry for the confusion.
I go to the dermatologist every 3 months to discuss my skin and get my bloods done and as far as im aware my blood results are normal. Thanks for replying!
bav101 Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 919
Threads: 7
Joined: Apr 2015
Gender: Male
Location: Bristol
Treatment: Tremfya
#7
Fri-01-05-2015, 16:59 PM
(Fri-01-05-2015, 14:40 PM)lcurry92 Wrote: Hi everyone, I've just registered and not 100% sure how things work on here,

Have you tried turning it off and on again? oh and every Friday.. you have to provide cake for everyone... cuz you know cake...

Seriously though, welcome, anything and everything you need to know these guys prolly have the answer to it. Great bunch of folks so enjoy your stay Smile
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,501
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#8
Fri-01-05-2015, 17:37 PM
(Fri-01-05-2015, 15:28 PM)lcurry92 Wrote:
(Fri-01-05-2015, 15:10 PM)Caroline Wrote: Hi Lcurry92,

Welcome to psoriasisclub, a group of fellow sufferers with psoriasis.

There is a lot to find on Fumaderm on the forum. No doubt Jim will come back to you.
I am also on DMF, but not on Fumaderm.

In order to make things easier for Jim, can you tell a bit more?

What kind of side effects did you get?
How severe are they?
Did you ever have it before?
What is the serious injury you have?
How often have you been to the dermatologist?
Is the presciption done according to a slow protocol?
How often was your blood measured? If you are on it for a year now, that should at least have been 4 times in my opinion.

Hope to read more from you.

Caroline.


I have vomiting, cramping and feeling nauseous for days at a time. I'd say moderately severe on a bad day i find it difficult to eat anything which is horrible because you have to take the tablets with food!
The "add insult to serious injury" is only a saying, i dont have any serious injury sorry for the confusion.
I go to the dermatologist every 3 months to discuss my skin and get my bloods done and as far as im aware my blood results are normal. Thanks for replying!

Hi Lcurry,

Ok, haha,  then I did not get the expression right. That is because I am not a native English speaker.
Always pleased to give  a reply, we are here for each other.

I think Jim will want to say something about it, but if I were you I would reduce the number of pills to take. For instance you are now on six if I were you I would go to for instance four or even three.
Just in order to get you some rest in the intestines.
Of course that is a little bit depending on the seriousness of your psoriasis, but it may be better to get a little back and to feel a lot better. Later on you can always increase again.
Second thing that I would do is asking for the results of your blood tests. So you can gather them and you can have an eye on it your self.

Caroline.

P.s.  Oh and don't mind Bav  too much, Hihi, we have recently acquired this nutcase in this forum, and he has  adapted himself very quickly with the rest of the silly crowd.  Tongue  Wink
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#9
Fri-01-05-2015, 17:57 PM
(Fri-01-05-2015, 15:28 PM)lcurry92 Wrote:
(Fri-01-05-2015, 15:10 PM)Caroline Wrote: Hi Lcurry92,

Welcome to psoriasisclub, a group of fellow sufferers with psoriasis.

There is a lot to find on Fumaderm on the forum. No doubt Jim will come back to you.
I am also on DMF, but not on Fumaderm.

In order to make things easier for Jim, can you tell a bit more?

What kind of side effects did you get?
How severe are they?
Did you ever have it before?
What is the serious injury you have?
How often have you been to the dermatologist?
Is the presciption done according to a slow protocol?
How often was your blood measured? If you are on it for a year now, that should at least have been 4 times in my opinion.

Hope to read more from you.

Caroline.


I have vomiting, cramping and feeling nauseous for days at a time. I'd say moderately severe on a bad day i find it difficult to eat anything which is horrible because you have to take the tablets with food!
The "add insult to serious injury" is only a saying, i dont have any serious injury sorry for the confusion.
I go to the dermatologist every 3 months to discuss my skin and get my bloods done and as far as im aware my blood results are normal. Thanks for replying!
Hi lcurry welcome indeed I see you have met a few of us already as you can see we will all try to put you at ease
Caroline is very knowledgeable about DMF and as her first language is not English she does remarkably well, although some of our sayings send her running to her phrase book...  
Regarding your symptoms that is strange that after a year it is beginning to have these effects on you  you should be having your bloods done monthly really to be safe.
Ask for the results they are important for you to know
Are you taking anything new or eating differently ?
With regard to it not working and yet you are on maximum dose is a mystery
Was it working until recently?
I'm sorry I can't think of a reason for it to stop working and side effects getting worse
I will think a bit longer and write again later
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,918
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#10
Fri-01-05-2015, 19:52 PM
Hello lcurry  Welcome to Psoriasis Club.

I don't know much about Fumderm but I noticed the DMF Gang are helping you, so I will leave you to them.

As for not being sure how things work around here, just dive on in you will find us a friendly bunch. If you have any problems just shout out somewhere and someone will come running, the Help using the forum board also has some tips to help you get settled in.

Regards.

Fred.  
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