Bill's pure dimethylfumarate thread

[jiml]

I take my hat off to you Bill .... not just for taking the raw DMF  but for the way you have chronicled the journey to give others hope where treatments are expensive or simply not working.
I know you don't advocate others trying your method as it does require a great deal of care and knowledge. But should anyone wish to attempt it. You have paved the way to make it as easy as possible, noting all the pitfalls along the way  

[Fred]

This thread never fails to entertain Bill. Thank you for keeping it updated.

I still think you're mad, but I take my hat off to you.

[Bill]

I may be mad, Fred, but my p and psa have been inactive for over 4 1/2 years with a cheap and simple treatment that shows no sign of faltering. I would most certainly be mad to forfeit this for a system with unreasonable access hurdles and inferior and dangerous treatments.

Cheers

[Fred]

I may be mad, Fred, but my p and psa have been inactive for over 4 1/2 years with a cheap and simple treatment that shows no sign of faltering. I would most certainly be mad to forfeit this for a system with unreasonable access hurdles and inferior and dangerous treatments.

Cheers

Yes you certainly are proof of it's efficacy Bill.

I did by the way mean "Mad" in a nice way. I class you as the Psoriasis Club mad scientist.

[Caroline]

I may be mad, Fred, but my p and psa have been inactive for over 4 1/2 years with a cheap and simple treatment that shows no sign of faltering. I would most certainly be mad to forfeit this for a system with unreasonable access hurdles and inferior and dangerous treatments.

Cheers

Yes you certainly are proof of it's efficacy Bill.

I did by the way mean "Mad" in a nice way. I class you as the Psoriasis Club mad scientist.

Bill is our own psoriasisclub mad scientist, but indeed completely meant as utterly positive with the most respect of what he has achieved.
We all love you Bill.  

[Bill]

An update. I had a blood test two weeks ago (13/10/2017), and here are the results:

WBC: 5.0 N:3.3 L:0.9 M:0.7 E:0.15 B:0.05

Compare with 24/07/2017

Total WBC:6.9 N:5.1 L:0.966 M:0.7 E:0.07 B:0.07

Compare this with the test six weeks before 24/07/2017:

Total WBC:5.6 N:3.9 L:0.896 M:0.6 E:0.11 B:0.06

I guess that now I have exhausted my exploration of simple measures to boost the lymphocyte count. I suspect that no supplementation has made any difference. Most of the WBC drop seems to be from a reduction in neutrophils, but I am at a loss to explain this. I was using b12/folate patches prior to the WBC increase, and I have ceased folate supplementation and patches since starting the B12/folate injections. The drop in lymphocytes I can explain as I have been dosing twice weekly for four weeks prior to the test. I will cut back to three times fortnightly as I know this regime to keep the lymphocyte count fairly stable. I will have a further blood test in four weeks, and I might revisit b12 patches and folate supplementation just out of curiosity.

[jiml]

An update. I had a blood test two weeks ago (13/10/2017), and here are the results:

WBC: 5.0 N:3.3 L:0.9 M:0.7 E:0.15 B:0.05

Compare with 24/07/2017

Total WBC:6.9 N:5.1 L:0.966 M:0.7 E:0.07 B:0.07

Compare this with the test six weeks before 24/07/2017:

Total WBC:5.6 N:3.9 L:0.896 M:0.6 E:0.11 B:0.06

I guess that now I have exhausted my exploration of simple measures to boost the lymphocyte count. I suspect that no supplementation has made any difference. Most of the WBC drop seems to be from a reduction in neutrophils, but I am at a loss to explain this. I was using b12/folate patches prior to the WBC increase, and I have ceased folate supplementation and patches since starting the B12/folate injections. The drop in lymphocytes I can explain as I have been dosing twice weekly for four weeks prior to the test. I will cut back to three times fortnightly as I know this regime to keep the lymphocyte count fairly stable. I will have a further blood test in four weeks, and I might revisit b12 patches and folate supplementation just out of curiosity.

Those numbers are looking good Bill the lymphocyte count is only just out of normal, I would be happy they are all within the normal range and not worry why there is fluctuation as long as it’s not dramatic.... there are all sorts of things that affect the results. I would just be happy with them and yes keep an eye on them and enjoy life
My results vary every time but as long as they don’t dramaticaly rise or fall I’m happy
I’ll put all my figures up later so you can see the variance in mine

[Bill]

Thank you, Jim.

[jiml]

Thank you, Jim.

No problem it will give you someone else to measure against  

Edit
Added link RE: Jims continued use of Fumaderm

[JohnB]

Hi Bill 
Shame your experiment didn't work, you could have been on to a winner.
I don't understand what the tests mean but from what Jim says they sound good and long may it continue. For us more medically challenged, I wonder if a brief explanation of the results actually mean would help. 
Keep up the good work 
JohnB