Bill's pure dimethylfumarate thread

[Fred]

I wish I could share your amusement.

I'll send you some in the post.

[Grizzly Bear]

Good to see DMF is working for your P Bill

[Bill]

Thanks Andy. It is a fantastic treatment as long as it doesn't kill me. My blood test yesterday showed that my lymphocyte count is up to 0.7, and that was a day and a half after a 1.2 gram dose, so I'm hoping the next test in a month will be good. I hope all is well for you mate.

Cheers,

Bill

[Bill]

A few pics to show how close I am to being clear.













I am currently on a 1200 mg single weekly dose, supplementing with d3, and avoiding the sun as much as possible. I suspect that DMF and sun exposure combined can cause a lymphopaenia. This is something to be careful of, but it is also of interest as it suggests that psa could be treated more effectively by initially combining DMF with low dose radiotherapy targeting the affected joints.

Cheers,

Bill

[Caroline]

A few pics to show how close I am to being clear. (For easier reading I remove the pics)

I am currently on a 1200 mg single weekly dose, supplementing with d3, and avoiding the sun as much as possible. I suspect that DMF and sun exposure combined can cause a lymphopaenia. This is something to be careful of, but it is also of interest as it suggests that psa could be treated more effectively by initially combining DMF with low dose radiotherapy targeting the affected joints.

Cheers,

Bill

Hi Bill,
That really looks great !!!
And that on that specific treatment protocol. I will certainly talk it over with my doctor. What his thoughts are about that.  
You suggestion on radio therapy made my mind go back to a period before I used DMF, I have described this over here RE: Gluten free diet could help psoriasis, could it be that the radiation treatment I at that time got was the cause of the temporary relief?

Cheers,
Caroline

[Fred]

Looking good Bill.  

Interesting that you are avoiding the sun and your thoughts about sunlight and DMF. It would be a shame to have to avoid sunshine especially in places like the UK.  

But it's nice to see you getting some relief, keep it up.

[jiml]

Great pictures Bill the photos show great clearance, I hope the clearance continues
The Radiotherapy idea is being looked at I understand where all other treatments are failing with Rheumatoid arthritis ...but I believe this is just an idea

In the last five years on Fumaderm ( DMF) I have always sought out the sun as I find it has helped me throughout my life, and has always had a positive affect on my skin... but I guess we don't get the strength in the sunshine here that Bill experiences in Australia

So there may or may not be a link, I will watch with interest Bills experience.

[Bill]

Thanks, Caroline. DMF is a radiosensitiser so it does make sense, especially as DMF targets the lymphocytes causing the trouble.

Thanks, Fred. I did get full body sun exposure, so I may have been okay with limited exposure, but for now I want to test the idea. If I am correct, then avoiding the sun will up my lymphocyte count and allow me to take more DMF and better manage the arthritis as well.

Thank you, Jim. You are right. It is an idea to test, but I cannot think of anything else I did out of the ordinary. The disease hardly seems to change, but obviously it is improving ever so slowly. I will have another blood test in a couple of weeks. Fingers crossed.

Cheers,

Bill

[Kat]

That's great Bill!!

[Bill]

Thank you Kat.