Fri-11-03-2016, 21:51 PM
(Fri-11-03-2016, 21:18 PM)Fred Wrote: #1 They are not going to be interested in Psoriasis Club Jim. We are just people living with the condition and our opinion is worthless to someone in a white coat that has never had to live with it. What do we know ?
#2 In their defence if the protocol is telling them that the risk is to high and there not enough evidence. Then they have to follow that protocol. We may not like it or even agree, but their hands are tied and should something go wrong then it could be the end of their career.
#3 If I were you I would just hang on in there till July
Thanks Fred I will ....I know they have a protocol but I'm not asking to go higher than the maximum dose but I will do as they want and wait till July
As you say what do we know we only speak to people who have nothing to gain by lying about their treatment and how it works ........
Anyway I will see you at the bar I need a drink