My Fumaderm Journey

[jiml]

Thanks Jim  . Being here is most certainly helping me also - I'm sure it wouldn't be any easier doing it on my own. Having support and a place to share experiences (good and bad) makes a huge difference  .

Funny you should mention your nurses comments - my pharmacist had never heard of it either! My derm nurse warned me of the same mind you, and she also said that many patients had encountered unpleasant remarks from their pharmacists due the cost of the drug being very expensive! I haven't encountered any problems thankfully, and they can't refuse to provide it, but its not fair on those who have. We all already have enough to deal with!!

I've not had my Bloods results yet, will post when I do. Hope yours are all OK 

The reason they don't know about it is because as yet it is unlicensed and not in their mims bible and they have no idea what it is, but at least my nurse is a bit more aware now

As for the cost I'm guessing it's about the same as acetretin and not at all expensive as drugs go

Always pleased to be here and discuss and make it a little easier to bear there are a few of us on the same treatment now so we can learn from each other hopefully,