Sun-22-11-2015, 15:35 PM
Hi Victoria . welcome to the forum.
What a blow at a very young age however he seems to be coping very well and at last it would appear that you are getting dermatology support which should have been there months ago. The school also seems to be giving him support with some good friends which is very important.
Do tell the hospital when you have used your own UV as it is important not to over do this area ,try the food connection as it cannot do any harm and it may help . I do hope that he will improve and there is one point to remember that in the last few years there has been more improvements in the control of P and it is going in the right direction so I think we can all look forward to a better future.
Take care and all the best to him ,just have good look around as I am sure that Fred will have loads of info that will be very useful
Dave
What a blow at a very young age however he seems to be coping very well and at last it would appear that you are getting dermatology support which should have been there months ago. The school also seems to be giving him support with some good friends which is very important.
Do tell the hospital when you have used your own UV as it is important not to over do this area ,try the food connection as it cannot do any harm and it may help . I do hope that he will improve and there is one point to remember that in the last few years there has been more improvements in the control of P and it is going in the right direction so I think we can all look forward to a better future.
Take care and all the best to him ,just have good look around as I am sure that Fred will have loads of info that will be very useful
Dave