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Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
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Psoriasis Awareness Campaigns! Are you as confused as me?

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Psoriasis Awareness Campaigns! Are you as confused as me?
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,968
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#1
Wed-26-10-2011, 19:48 PM
As much as I like the idea of having Psoriasis Awareness Campaigns, and I do appreciate the work that everyone does, I’m starting to get a little confused over when they are on, who is actually in charge of running them, and what is the aim!

Obviously the aim is to raise awareness about Psoriasis. But is it? Looking at some of the advertising that sometimes goes with “Awareness Campaigns” I have noticed the big 5 are often present. Abbott / Janssen / Leo / Novartis / Pfizer.

The International Federation of Psoriasis Associations (IFPA) looks like a good idea at first glance. But again there are the big 5! And why do members have to pay a minimum of $25 per year to be a member?

World Psoriasis Day: Is on October 29 of each year; however it looks like the website is only updated once a year. Oh look its run by IFPA and there are the big 5 again!

The National Psoriasis Foundation (NPF) has “Psoriasis Awareness Month” each August. Whilst checking this on their website I did spot Amgen / Abbott / Janssen / and Pfizer at the foot of the page.

The Psoriasis Association UK tells us that it’s Psoriasis Awareness Week 1st-7th November. I’m pleased to say that I didn’t find any advertising. stop press check out their links page!

Well I think I should stop there as this post will obviously upset some people. But you know what I don’t care. I’m just a person with psoriasis, sharing information with others in the hope that someone will get some useful information.

My Psoriasis Campaign: Share information, support you fellow sufferers all year round as and when you can. Let the people do the advertising for the drug manufacturers by sharing their own experience. Oh and I hereby announce 2012 as World Psoriasis Year.

*PC Note: This post is not intended to take anything away from the hard work that Abbot / Janssen / Leo / Novartis / Pfizer / Amgen / IFPA / World Psoriasis Day / NPF / Psoriasis Association do. it’s just my personal opinion, and let’s hope one day we can all work together to find a cure for Psoriasis. (Then again would the big 5 want that!)
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Messages In This Thread
Psoriasis Awareness Campaigns! Are you as confused as me? - by Fred - Wed-26-10-2011, 19:48 PM
RE: Psoriasis Awareness Campaigns! Are you as confused as me? - by Lostintranslation - Fri-28-10-2011, 14:52 PM
Update on my first post - by Fred - Sat-29-10-2011, 18:54 PM

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