[split] from Fumaderm thread

[Caroline]

Caroline,

Thanks for the fast & comprehensive reply!

Seems like it's a bit of a process - but that's okay, often the case with anything worthwhile.

Yes, it is.

Point taken about doctors, thanks.

So how is your proriasis now, exactly? What percentage improvement would you give it, & how long did that take?

It was:
- thick and painful finger joints, and foot joints.
- operating a computermouse was not possible.
- walking more than 1 km was undoable because of the pain.
- running completely impossible.
- driving a car was very inconvenient, so I switched to the motorcycle (sorry Fred ).
- very stiff in the mornings
- physiotherapy necessary
- thick psoriasis on my scalp around the hairlines.

Now:
- very slim fingers.
- almost no pain, with desk and mouse work, depends a little on the weather type.
- can walk for at least 12 km without significant pain.
- no psoriasis on my scalp anymore, see for yourself [Group Specific]
- running still impossible, switched to spinning.
- driving a car to the south of France is no problem anymore.
- no physiotherapy necessary anymore.
- still driving a motorcycle, because it is fun ! (sorry Fred )

In other words... I am alive !!  

Any side-effects of note?

yes:
- lower white blood cells (therefore always under treatment of a doctor to keep an eye on that), but no problems because of that.
- lightly instable intestines
- sometimes a flush, I turn completely red !

I found a price list in the end. Psorinovo 120mg costs 75 euros for 100 capsules.  If I took 6 x 120mg p day (for example) that would cost me 150 euros a month, or $US195 monthly.

That's very expensive. I guess there's no cheaper way?

Indeed, it is not cheap, and there is no cheaper way.
But my health and condition is worth it. The time I was on MTX was really the worst. Luckily in the Netherlands it is within the insurance, so part of it is paid for me.

Regards,
Caroline

Thanks again & all the best,

John