Health Boards
Fri-20-02-2015, 21:20 PM
I can tell you over here.. I have ask for my blood results and always get strange looks as if to say, why would you want them ....
.
Well BRIGHTEYES a mixed result today ... Shame it wasn't the consultant you saw but you did learn some things
that the cyclosporin was upsetting your kidneys and getting your bloods messed up
you found your bloods are now normal
The nurse did take notes to ask the consultant so your message may well get through
.
What I would do is as Fred said, take the methotrexate and some pain killers
Hope that it starts working
Tomorrow get on the phone to the dermatology and tell them you aren't happy on methotrexate and need a phone call from someone that can help . Tell them that methotrexate is as bad for your kidneys as cyclosporin and you would prefer to be on something less toxic like Fumaderm .... If he says it's not an approved drug lead him here to the Fumaderm threads and tell him it is used in the UK and very successful...I came off methotrexate and within a month was on Fumaderm
It's what I would do if it was me. Because there is no need to suffer when there are inexpensive drugs available that have a 70% chance of working
.
Well BRIGHTEYES a mixed result today ... Shame it wasn't the consultant you saw but you did learn some things
that the cyclosporin was upsetting your kidneys and getting your bloods messed up
you found your bloods are now normal
The nurse did take notes to ask the consultant so your message may well get through
.
What I would do is as Fred said, take the methotrexate and some pain killers
Hope that it starts working
Tomorrow get on the phone to the dermatology and tell them you aren't happy on methotrexate and need a phone call from someone that can help . Tell them that methotrexate is as bad for your kidneys as cyclosporin and you would prefer to be on something less toxic like Fumaderm .... If he says it's not an approved drug lead him here to the Fumaderm threads and tell him it is used in the UK and very successful...I came off methotrexate and within a month was on Fumaderm
It's what I would do if it was me. Because there is no need to suffer when there are inexpensive drugs available that have a 70% chance of working