Mon-29-12-2014, 00:55 AM
Hi Jim (good name by the way) a big to the club I see you have met several members already and they have probably told you that I'm the sensible one on the forum.. Which you should find out in due course.
We are a small but happy band of sufferers that Share our experiences the highs and the lows of the disease. We are not medical professionals and we just give advice from the knowledge of sharing and from our experiences
I am lucky at the moment and have been scale free for over three years but have spent my life fighting it
You say it is mainly on your hands and feet and they have prescribed cocortosteroid cream for you its a very strong one they have given and if that's not doing the trick ( of which I'm not that surprised) as they are not treating the cause just the visible symptom . I would be inclined to go back and say these aren't working and you need something to treat the cause ( to work on your autoimmune system) they have a varietyy of options open to them like methotrexate which I couldn't get on with but some say it works for them or Acetretin, or cyclosporin or one of the biological treatments there is so much they can do these days and steroids is not a good option in my opinion. Although with mild psoriasis steroid ointments like Dovobet can give quick relief. I do hope you can get some relief so you can go back to guitar playing and building ....
They say I won't know of SRV .... HUH
No to be honest Fred try's to get me onto the blues and I had to google to find who you meant
Good luck with beating this awful unforgiving disease. You now have a bunch of sufferers to turn to anytime you want to chat or discuss how things are progressing ........ There's always an open door and usually a friendly ear although non of us are here 24 hours a day
Come back often and update us and let us know how the guitar building is going
It's good to have a guitar player on board you will have to team up with our blues singer .
Jim. L
We are a small but happy band of sufferers that Share our experiences the highs and the lows of the disease. We are not medical professionals and we just give advice from the knowledge of sharing and from our experiences
I am lucky at the moment and have been scale free for over three years but have spent my life fighting it
You say it is mainly on your hands and feet and they have prescribed cocortosteroid cream for you its a very strong one they have given and if that's not doing the trick ( of which I'm not that surprised) as they are not treating the cause just the visible symptom . I would be inclined to go back and say these aren't working and you need something to treat the cause ( to work on your autoimmune system) they have a varietyy of options open to them like methotrexate which I couldn't get on with but some say it works for them or Acetretin, or cyclosporin or one of the biological treatments there is so much they can do these days and steroids is not a good option in my opinion. Although with mild psoriasis steroid ointments like Dovobet can give quick relief. I do hope you can get some relief so you can go back to guitar playing and building ....
They say I won't know of SRV .... HUH
No to be honest Fred try's to get me onto the blues and I had to google to find who you meant
Good luck with beating this awful unforgiving disease. You now have a bunch of sufferers to turn to anytime you want to chat or discuss how things are progressing ........ There's always an open door and usually a friendly ear although non of us are here 24 hours a day
Come back often and update us and let us know how the guitar building is going
It's good to have a guitar player on board you will have to team up with our blues singer .
Jim. L