Health Boards
Wed-22-05-2024, 22:20 PM
(Wed-22-05-2024, 19:05 PM)Trampledrosie Wrote: Hi, I found this thread through a search on ppp. I have had this increasingly debilitating condition for about 4 years. Started on one foot as a small patch and is now covering most of the soles of both feet and now seems to be creeping up the sides and tops of my feet, maybe even my ankles. I have been doing light therapy for 6 months and it has helped a tiny bit on my soles. It is so painful, sore, itchy that I can’t wear socks or shoes and I have become isolated to the point of rarely leaving my house. I am on disability due to other conditions. I think it started as an autoimmune reaction to having cancer which was treated, now 3 years since last treatment. Doctors tell me to go live my best life now that cancer is gone but they don’t understand how painful this psoriasis is. I can make it to the grocery store once in a while. After about 20 mins on my feet they are painful, sore, like someone is sticking hot pokers in me. I also have neuropathy from cancer treatment so it feels like bugs are crawling up my legs most of the time. I gained a lot of weight during cancer and can’t walk to exercise which also helps other pain. I am so frustrated so I am hoping I can find some help or support or ideas here. Hoping not to be judged too harshly as I do still smoke. I don’t drink much alcohol. I don’t have much energy for cooking these days so that has been awful. My stress is through the roof and I am not sure what to do anymore as I am often so depressed that I don’t even get dressed and lose myself in tv or video games. My life has gotten so small. Hoping that I can gain some motivation and find some ideas to try and at least get back on my feet.
Hi Trampledrosie, and welcome to Psoriasis Club!
Everyone’s story is different but I recognise feeling so fed up with psoriasis, and trying treatment which doesn’t always deliver, and how no one else can understand just how painful it can be when it’s flaring.
There’s lots of info on here and support. I don’t think I’ve ever felt judged. I hope you like it here.