Health Boards
Thu-25-09-2014, 11:53 AM
Hello Sandra, yes it's in the right place, I posted one similar a while back Warning Very Sad!
It is always sad to hear these types of things, and it makes me feel very uncomfortable as I feel if these people would just come to Psoriasis Club and have chat with it's members they would find they are not alone.
It's good to hear your brother is questioning you about your feelings as it goes a long way, and of course you are self conscious about how you think it looks to others. I once thought of getting a magic marker and writing "I'm Not Contagious" on my head.
Re your g.p. and consultant never asking you how you feel, or how your daily life affected, they should be doing this. Give them the links to this: NICE Quality Standards for Psoriasis Also tell them they should be using the Dermatology Life Quality Index (DLQI)
It's a well known fact that a lot of people with psoriasis also will probably suffer with depression so any professional should know this and should be keeping an eye out, if their not then I would change your GP and/or consultant.
When you say "I am at the hospital tomorrow to see the Consultant, and I will be impressing on them their own guidelines. I will be impressing upon them, the difficulties we all face in daily life. I will not be fobbed off with U.V. And heavy duty steroids any longer." This is the way to go as it is your body they are playing with, tell them it's affecting your daily life and you want something better as your current treatment obviously isn't working.
Some threads you may be interested in reading:
Psoriasis Myths and History
Depression and psoriasis
Cohabitants of psoriasis patients have similar DLQI results
Is Psoriasis Contagious?
The Hidden Enemy
*If anyone is reading this and want to talk with others who understand, please come and join us. You will find a very friendly group of people always willing to talk, so never be alone with psoriasis.
It is always sad to hear these types of things, and it makes me feel very uncomfortable as I feel if these people would just come to Psoriasis Club and have chat with it's members they would find they are not alone.
It's good to hear your brother is questioning you about your feelings as it goes a long way, and of course you are self conscious about how you think it looks to others. I once thought of getting a magic marker and writing "I'm Not Contagious" on my head.
Re your g.p. and consultant never asking you how you feel, or how your daily life affected, they should be doing this. Give them the links to this: NICE Quality Standards for Psoriasis Also tell them they should be using the Dermatology Life Quality Index (DLQI)
It's a well known fact that a lot of people with psoriasis also will probably suffer with depression so any professional should know this and should be keeping an eye out, if their not then I would change your GP and/or consultant.
When you say "I am at the hospital tomorrow to see the Consultant, and I will be impressing on them their own guidelines. I will be impressing upon them, the difficulties we all face in daily life. I will not be fobbed off with U.V. And heavy duty steroids any longer." This is the way to go as it is your body they are playing with, tell them it's affecting your daily life and you want something better as your current treatment obviously isn't working.
Some threads you may be interested in reading:
Psoriasis Myths and History
Depression and psoriasis
Cohabitants of psoriasis patients have similar DLQI results
Is Psoriasis Contagious?
The Hidden Enemy
*If anyone is reading this and want to talk with others who understand, please come and join us. You will find a very friendly group of people always willing to talk, so never be alone with psoriasis.