Health Boards
Thu-25-09-2014, 09:45 AM
Hi all,
Just had a text from my brother, informing of an article in The Daily Express re: Young woman who has killed herself as a direct result of the depression and anxiety related to psoriasis. How awful and tragic for both her and her family.
My brother has been questioning me about how I feel, as he says he knows how bad my psoriasis is at present. Of course I have reassured him but it did make me think.
Not once has a g.p. or a consultant ever asked me how I feel, how is my daily life affected etc..
Actually it effects my daily life, my relationships, work etc.. greatly.
For example: at work they have a Hoover handy for me as I flake everywhere. After sitting in long meetings, I get up and look at the floor and it is covered in my skin so I get the Hoover and clean it. At the end of the day, I Hoover at Head Office as the cleaners staff are unhappy, doesn't matter that they know it isn't contagious and actually I am so self conscious I would do it anyway. When I go to clients homes, I can see them focusing on my hands and have to first explain that my condition is not contagious before I can support them!
I am lucky I have supportive family and a husband who is very understanding, because we no longer go for meals out anymore because I shed so much skin, I do not go with him to work functions anymore as the last time I did people were incredibly rude and one person actually said, I would stay home if I looked like that!
I look and feel revolting, it is revolting! I am in pain! I am exhausted. I am at times made to feel like I am a hypochondriac. I have psoriasis in places that are too embarrassing to discuss and am uncomfortable most of the time.
So, I have often said my psoriasis did not develop until later in life, I do not know how I would have coped if it had started when I was young.
I am at the hospital tomorrow to see the Consultant, and I will be impressing on them their own guidlines. I will be impressing upon them, the difficulties we all face in daily life. I will not be fobbed off with U.V. And heavy duty steroids any longer. I know Doctors are only human, I know they make mistakes and I am not in anyway implying they are useless, just that after 8yrs of seeing them, it is time they took seriously the impact of psoriasis on daily life.
Fred: hope I put this thread in the right place, apologies if not.
Just had a text from my brother, informing of an article in The Daily Express re: Young woman who has killed herself as a direct result of the depression and anxiety related to psoriasis. How awful and tragic for both her and her family.
My brother has been questioning me about how I feel, as he says he knows how bad my psoriasis is at present. Of course I have reassured him but it did make me think.
Not once has a g.p. or a consultant ever asked me how I feel, how is my daily life affected etc..
Actually it effects my daily life, my relationships, work etc.. greatly.
For example: at work they have a Hoover handy for me as I flake everywhere. After sitting in long meetings, I get up and look at the floor and it is covered in my skin so I get the Hoover and clean it. At the end of the day, I Hoover at Head Office as the cleaners staff are unhappy, doesn't matter that they know it isn't contagious and actually I am so self conscious I would do it anyway. When I go to clients homes, I can see them focusing on my hands and have to first explain that my condition is not contagious before I can support them!
I am lucky I have supportive family and a husband who is very understanding, because we no longer go for meals out anymore because I shed so much skin, I do not go with him to work functions anymore as the last time I did people were incredibly rude and one person actually said, I would stay home if I looked like that!
I look and feel revolting, it is revolting! I am in pain! I am exhausted. I am at times made to feel like I am a hypochondriac. I have psoriasis in places that are too embarrassing to discuss and am uncomfortable most of the time.
So, I have often said my psoriasis did not develop until later in life, I do not know how I would have coped if it had started when I was young.
I am at the hospital tomorrow to see the Consultant, and I will be impressing on them their own guidlines. I will be impressing upon them, the difficulties we all face in daily life. I will not be fobbed off with U.V. And heavy duty steroids any longer. I know Doctors are only human, I know they make mistakes and I am not in anyway implying they are useless, just that after 8yrs of seeing them, it is time they took seriously the impact of psoriasis on daily life.
Fred: hope I put this thread in the right place, apologies if not.