Health Boards
Wed-07-12-2022, 14:11 PM
Hi all, thank you for all the nice responses.
To answer Carolines question : No they didn't give me MTX but they brought it up as a possibility during earlier consults. But i already searched a lot on that matter and declined because i thought that it wouldnt help me. The stories weren't positive either haha.
I will tell you what I've done so far
My route was as following. At first 2 years ago in september 21 i got the tennis elbow pain in the tendon, but at fist i thought it was due to my work on the computer. Which is kind of logical. Then in february 22 i got pain in the inside of my knee on the back the biceps femoris, real nasty place, but then i thought it was due to my running. So i never even thought about a possibility of an illness at first.
In january 22 i got a sudden outbreak of psoriasis, psoriasis guttata the dermatologist told me. It was quite bad and aggressive , and until that time I've never had this so i didn't really understand it as well. I did 20+ light treatment for that.
Then in april the swollen toe for the first time ( dactylitis) and then also in april 22, i got the achilles tendon pain. That's when i finally thought this is not normal, and kind of stumbled on psa, and had like almost all of the symptoms. Then in may the diagnosis.
But then first i had to try the cheapest drugs at the rheum, which is the normal route i understand now. So sulfasalazine and nsaids 90 mg painkillers. But it didn't do nothing. They then did an ultrasound on my knee arm and all the other places but they couldn't see anything? I was really surprised by that, because i had a lot of pain.
So i really had to press the rheum to undertake more action, cause she wasn't willing to subscribe biologicals otherwise. And they were talking about fibromyalgia and stuff already which i found nonsens. I didn't agree so i pushed (respectfully) to take other actions, so she ordered a scintigraphy.
And then they could see degeneration in the bones of my shoulders and enthesopathy around both my knees. After that she told me that the shoulders wasn't normal for my age so that must be the PsA. Then i could start with the biologics. So kind of glad about all that, cause otherwise I wouldn't have gotten any biologics im sure. And would be o maybe fibromyalgia case. And looking back on that kind of disturbing that otherwise i probably would have attained a lot more damage to my bones in the coming years.
I also did fysio during this time for a year but i found out that i could do exercises and make the leg stronger to a certain point but never fully recover. And had to watch out with the overload which I've had for like 10 times or something. And when i reached that 2 months of training where gone and you have to start over, which was kind of demotivating as well after a year haha.
And i noticed that when i did too much, walking or fysio excersises with my leg i got the overload of the tendon or entheses around the knee. And when i reached that point i had a lot of pain for like 9/10 days and couldn't walk or do anything. Even while resting i had constant pain.
So my view is maybe that my elbow and knee are still kind of chronic on the entheses part cause i wasn't on medication at that time and i overloaded it many times when i didn't knew what it was. And now its way harder to recover from that i feel. So i hope the biologcials in combination with fysio will do the trick. For instance my achilles didn't become chronic, cause i was on medication at that time.
So after each exercise now at the fysio i take 2/3 days rest. Cause I've learned that's better, also read here that its better to do light excersises and more of them then hard ones. From my personal experience that makes senses cause i got the overload otherwise if i did to much.
And yes i heard about the DMF as well and its something to consider as well if the biologics won't work. I don't know if skilarence is easy attainable in the Netherlands which is where im from. But im willing to try everything. Even the black market i told the rheum nurse
she wasn't to happy about that but hey give me something that works rigghhtt.
But from the articles I've read cosentyx would be good for resolving entheses so i was kind of aiming on that.
Thank you for all your responses its really helpful, and it is personally nice for me to talk with people who (have) experience the same difficulties or obstacles
So feel free to respond if you have tips or anything. Or maybe recognize things. Or suggestions to take an other route or something. I take everything in consideration and Im writing a lot of questions for my next appointment.
To answer Carolines question : No they didn't give me MTX but they brought it up as a possibility during earlier consults. But i already searched a lot on that matter and declined because i thought that it wouldnt help me. The stories weren't positive either haha.
I will tell you what I've done so far
My route was as following. At first 2 years ago in september 21 i got the tennis elbow pain in the tendon, but at fist i thought it was due to my work on the computer. Which is kind of logical. Then in february 22 i got pain in the inside of my knee on the back the biceps femoris, real nasty place, but then i thought it was due to my running. So i never even thought about a possibility of an illness at first.
In january 22 i got a sudden outbreak of psoriasis, psoriasis guttata the dermatologist told me. It was quite bad and aggressive , and until that time I've never had this so i didn't really understand it as well. I did 20+ light treatment for that.
Then in april the swollen toe for the first time ( dactylitis) and then also in april 22, i got the achilles tendon pain. That's when i finally thought this is not normal, and kind of stumbled on psa, and had like almost all of the symptoms. Then in may the diagnosis.
But then first i had to try the cheapest drugs at the rheum, which is the normal route i understand now. So sulfasalazine and nsaids 90 mg painkillers. But it didn't do nothing. They then did an ultrasound on my knee arm and all the other places but they couldn't see anything? I was really surprised by that, because i had a lot of pain.
So i really had to press the rheum to undertake more action, cause she wasn't willing to subscribe biologicals otherwise. And they were talking about fibromyalgia and stuff already which i found nonsens. I didn't agree so i pushed (respectfully) to take other actions, so she ordered a scintigraphy.
And then they could see degeneration in the bones of my shoulders and enthesopathy around both my knees. After that she told me that the shoulders wasn't normal for my age so that must be the PsA. Then i could start with the biologics. So kind of glad about all that, cause otherwise I wouldn't have gotten any biologics im sure. And would be o maybe fibromyalgia case. And looking back on that kind of disturbing that otherwise i probably would have attained a lot more damage to my bones in the coming years.
I also did fysio during this time for a year but i found out that i could do exercises and make the leg stronger to a certain point but never fully recover. And had to watch out with the overload which I've had for like 10 times or something. And when i reached that 2 months of training where gone and you have to start over, which was kind of demotivating as well after a year haha.
And i noticed that when i did too much, walking or fysio excersises with my leg i got the overload of the tendon or entheses around the knee. And when i reached that point i had a lot of pain for like 9/10 days and couldn't walk or do anything. Even while resting i had constant pain.
So my view is maybe that my elbow and knee are still kind of chronic on the entheses part cause i wasn't on medication at that time and i overloaded it many times when i didn't knew what it was. And now its way harder to recover from that i feel. So i hope the biologcials in combination with fysio will do the trick. For instance my achilles didn't become chronic, cause i was on medication at that time.
So after each exercise now at the fysio i take 2/3 days rest. Cause I've learned that's better, also read here that its better to do light excersises and more of them then hard ones. From my personal experience that makes senses cause i got the overload otherwise if i did to much.
And yes i heard about the DMF as well and its something to consider as well if the biologics won't work. I don't know if skilarence is easy attainable in the Netherlands which is where im from. But im willing to try everything. Even the black market i told the rheum nurse
she wasn't to happy about that but hey give me something that works rigghhtt. But from the articles I've read cosentyx would be good for resolving entheses so i was kind of aiming on that.
Thank you for all your responses its really helpful, and it is personally nice for me to talk with people who (have) experience the same difficulties or obstacles
So feel free to respond if you have tips or anything. Or maybe recognize things. Or suggestions to take an other route or something. I take everything in consideration and Im writing a lot of questions for my next appointment.