Mon-04-07-2022, 04:59 AM
(Sun-03-07-2022, 13:05 PM)Forest Walker Wrote:(Sat-02-07-2022, 15:40 PM)KatT Wrote: Glad you are feeling better and seeing improvements. Hope it continues to improve
I didn't know someone could get Crohn's in the lungs that must not be very common. Therefore lung inflammation. Does that mean you get pleural effusions?
Hope Humira keeps this under control too!!!
Thanks, KatT and Fred. No pleural effusions, thankfully. It shows up as Interstitial Lung Disease and Bronchiectasis. I had a lung biopsy in early 2007 that showed granuloma cells similar to those from prior biopsies of small bowel. It is not common. It's just bad luck. But good luck that it's responding to Humira. And a reason I'm fearful of switching from Humira to a different medication, such as Stelara.
Before Humira was approved for Crohn's in 2007, I was not expecting to live more than a few more years and was pretty ill, overall. In an earlier post, I wrote that I started Humira in 2012, but that year was wrong. It was 2007. I returned to roller skating in 2012. Two significant dates in my life. The skating is really good for the lungs and overall happiness. The weekly Humira is really helping to make deep breaths easier.
For now, the patches are small and not too troublesome. The itching is a little worse if I drink more than one glass of wine, as far as alcohol goes.
Glad to hear it is controlling Crohn's in the lungs also
I can't even imagine what you were going through prior to Humira....you are a strong and though cookie!!! I understand why you are fearful of changing biologics when Humira keeps it under control. Crohn's is a terrible disease