Mon-27-12-2021, 13:29 PM
(Mon-27-12-2021, 12:28 PM)YvonS Wrote:(Sun-26-12-2021, 21:11 PM)Caroline Wrote: Yvon, you could try to find the rheumatologist that is in one of the webinars of the PN. He is a relative expert on PsA, as far as I know.No worry's, thank you for your reaction and advice
Alternative is the Maartenskliniek, where there is also a good expertise.
Sorry I am reacting so late .. was occupied.
Caroline
My Reumatoligist is at the Maartenskliniek, i'm still there. But my experience also in this clinic is that not all Reumatoligist have experience with PsA. The first one in this clinic, but this was in 2016, said i could not have PsA because there was no visable redness and swelling
So thats why i looked up a Reumatoligist at this clinic with expertise in PsA, and he said that even without visable redness and swelling i realy had PsA. So that's why i won't go to a Reumatoligist who hasn't experience with PsA, because it hard to diagnose and for 10 years i have been send away with "fibromyalgia". That's not gonna happen again.
I've found two other Reumatoligist with expertise in PsA at this clinic, and asked if i can consult them instead of the one they wanne send me to.
And still waiting for their awnser....
If they don't call me today, i will phone them again tomorow...
Yes, that is the way to go I guess.
It is very difficult that sometimes we as patients really have to fight for our rights and for the right treatment.