Mon-20-12-2021, 19:35 PM
It's been a while.... sorry about that... i'm not feeling soo good, i'm in a lot of pain.
I went to my Reumatoligist on the 13th of October, and he was not amused by the assitant nurse giving me another painkiller. But because my compliants went away when i got back on my old painkillers, i had to go on with the Humira. For the pain in my neck and arm, he send me to a Orthopedist, to see if there's something he can do.
i had to make a new appointment for over 4 months, and my Reumatoligist also told me he wouldn't be working in this hospital anymore, his last day will be in december, that i had to see anther Reumatoligist
I was in shock, finally i had a doctor who realy listend, who was there for me...and now he is going away? Who is replacing him?
Then, on the 13 of November, i had my flu shot, and all my pain and fatigue came back
So i thought this would go away in time, before my next shot.
I took my next shot 12 days later..... nothing, still in pain.
I went to the orthopedist, got another CT-scan, long story short, he is convinced that the pain in my neck and arms/elbows/shoulders is not from nerves, or bone, or arthrosis, but it's all due AP. So it seems that the Humira isn't working for me at all. He advised me to speak to my Reumatoligist about that.
I got a new apointment for a new Reumatoligist, 26th of Januari. I looked this doctor up on the internet. She is not a expert on AP but on a other Artritis. So i called the hospital that i want to have a apointment with a Reumatoligist who is an expert in AP... They didn't want to help me, i had to this, take this Reumatoligist, i got angry and told them that i had to walk hospital in and out for 10 years because reumatoligist don't have expertise in AP, they told me they would phone back.... After 3 days still no call, send them a email, explained them also about my pain, the orthopedist, and told them that waiting for Januari is long, so please chance the Reumatoligist before i get an appointment until februari of March...
And still waiting.
I went to my Reumatoligist on the 13th of October, and he was not amused by the assitant nurse giving me another painkiller. But because my compliants went away when i got back on my old painkillers, i had to go on with the Humira. For the pain in my neck and arm, he send me to a Orthopedist, to see if there's something he can do.
i had to make a new appointment for over 4 months, and my Reumatoligist also told me he wouldn't be working in this hospital anymore, his last day will be in december, that i had to see anther Reumatoligist
I was in shock, finally i had a doctor who realy listend, who was there for me...and now he is going away? Who is replacing him?
Then, on the 13 of November, i had my flu shot, and all my pain and fatigue came back
So i thought this would go away in time, before my next shot.
I took my next shot 12 days later..... nothing, still in pain.
I went to the orthopedist, got another CT-scan, long story short, he is convinced that the pain in my neck and arms/elbows/shoulders is not from nerves, or bone, or arthrosis, but it's all due AP. So it seems that the Humira isn't working for me at all. He advised me to speak to my Reumatoligist about that.
I got a new apointment for a new Reumatoligist, 26th of Januari. I looked this doctor up on the internet. She is not a expert on AP but on a other Artritis. So i called the hospital that i want to have a apointment with a Reumatoligist who is an expert in AP... They didn't want to help me, i had to this, take this Reumatoligist, i got angry and told them that i had to walk hospital in and out for 10 years because reumatoligist don't have expertise in AP, they told me they would phone back.... After 3 days still no call, send them a email, explained them also about my pain, the orthopedist, and told them that waiting for Januari is long, so please chance the Reumatoligist before i get an appointment until februari of March...
And still waiting.