I think Skilarence has stopped working

[Kat]

Kat,

The important thing is that you are being managed by a qualified professional with access to many effective treatments. I might be able to play around with dosages and experiment with unproven supplements, but should dmf fail I will require the care of a dermatologist. I don't see much sense in suggesting things without the treatment guidelines. In Kerry's case 3*240mg daily is the maximum dose. A dermatologist could not tell you to take five at once if it is not in the treatment guidelines, and there is nothing to deal with a lymphopaenia. The guidelines suggest a dosing pause if the lymphocyte count drops to 0.7. I have had breaks in treatment of four weeks without a change in the count.

Cheers

Yes, I understand The reason we have doctors is to treat us (to the best of their ability as they have their own guidelines to follow) And I think it's great that you and Caroline and others who have a grasp of how your treatment works can share that knowledge! I will continue to be amazed by you all And I will continue to have to trust my doctors to treat me wisely, but the really good things are that I do understand people's experiences (side effects, if they've had success, etc) here with their treatment and I can take that to the doctor's visit with me. I don't get all the scientific stuff, but on rare occasion I do understand a bit so learn from it as well.