My Journey to halt/end my psoriasis

[Sheila]

Okay....because I felt I wasn't heard or my wishes respected, I contacted the nursing station where ***** works. When I talked to the nurse there, she assured me that Dr. ***** would read it and then put it into my medical file. So here is the letter I wrote. Tell me what you think please!
 Dear Dr. ******,

 
Yesterday, when I saw you, I didn’t feel like I had a chance to express myself appropriately. I feel that I didn’t walk away with knowing what the plan forward would look like for me. When we met yesterday, I expressed to you that I was not keen on topicals, and I have good reason, I think, to not want to have anything to do with them.
 
First, what you prescribed for me was a steroidal cream. I am whole heartedly against using more steroids. I have seen enough of steroids and I don’t like what they can do to the body, or to my mind (increased anger).
 
Secondly, I have psoriasis in my ear canals, around my nose, on my eyelids, on my forehead. How can a topical treat those areas? They can’t! Those areas, at least to me, are a high priority area. I mean, my ears itch a lot. I stick a finger in my ear, do the best I can to scratch it and come out with a bunch of dry skin. Q tips don’t do any good. I have resorted to using a bobby pin to scratch, which has its own set of risks. I scratch at my eyes as best I can as well. Being that I cannot scratch hard, I get little relief from my efforts.
 
Thirdly, isn’t psoriasis an auto immune disease? I mean I respect what a topical might do for me on the skin, but the white blood cells are attacking my bodies organs as well with the liver being first and foremost. At least that is what I have read from reputable sites. Am I wrong here? I don’t know for sure, because, the internet isn’t the most reliable place to find info, but I feel that the sites I did check out, are reliable. New England Journal of Medicine, et al.
 
So in asking for something other than a topical agent, I do not make the request lightly. I am asking for a little respect and to have you value my request. I do not write this letter with the intent of berating you, or belittling your opinion. I mean, for goodness sakes, you are a Doctor! You have spent a lot of time and energy to get where you are, and I respect that entirely. I would be a fool not to.
 
I guess what I am saying is, I want to make this a partnership where I as a patient, has input into the planning of my health outcomes. I want us to make a decision together, with me getting more educated along the way about what is going on with my body and the actions we will take, together, to fight this.
 
If you have any thoughts about this please feel free to contact me. I am open to conversation about this.
 
Sincerely yours,
 
Wintrman

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Edit by Fred: Doctors name removed.