Health Boards
Wed-03-03-2021, 01:54 AM
March 2nd update:
Had my appointment with my rheumatologist today. Shared the results of the blood tests done at the hospital as he hadn't received them yet.
1- Covid test = negative (phew…..don`t need that on top!)
2. Asked to increase azathioprine to treat lupus, he said no and stopped the medication immediately as my liver is being affected (as per blood test). He prescribed Plaquenil (hydroxychloroquine) as MTX or leflunomide (which I have taken before for PSA but is also used for lupus) are also out of the question because of my liver. That being said, I now have to get my eyes examined every year …..good thing as I am blind as a bat and will force me to get this done. I hate getting my eyes examined
Actually…..I seem to not like any person that has Dr. in front of their names….
3. Can continue Simponi …perfect!
4. Asked if there is another way to prevent in advance, i.e. prednisone prescription in case or something else. The answer was no….whenever it happens, it`s an automatic trip to the hospital as they need to do a CT scan to determine what it is…..it could be another pleurisy or could be a heart attack or something else
5. He told me that a pleurisy is very painful but does not damage the lung and that I am lucky (for now) that it`s the only organ affected by lupus…..oh joy!!!!!
6. Asked about the results of D-Dimer (from blood test) as it should be below 500 and I was at 3 700 and this is related to blood cloths but ruled out pulmonary embolism and deep vein thrombosis. His answer was ''it has nothing to do with the lupus or arthritis so not my area'' …wonderful!
Prednisone is working well….still sleeping in a sitting position but I can sleep a whole night uninterrupted by pain
Can`t wait to get a good night`s sleep in my regular sleeping position!
Next week….GP appointment
More to come.….hopefully no more new meds…..or I will open my own pharmacy!
Had my appointment with my rheumatologist today. Shared the results of the blood tests done at the hospital as he hadn't received them yet.
1- Covid test = negative (phew…..don`t need that on top!)
2. Asked to increase azathioprine to treat lupus, he said no and stopped the medication immediately as my liver is being affected (as per blood test). He prescribed Plaquenil (hydroxychloroquine) as MTX or leflunomide (which I have taken before for PSA but is also used for lupus) are also out of the question because of my liver. That being said, I now have to get my eyes examined every year …..good thing as I am blind as a bat and will force me to get this done. I hate getting my eyes examined
Actually…..I seem to not like any person that has Dr. in front of their names….3. Can continue Simponi …perfect!
4. Asked if there is another way to prevent in advance, i.e. prednisone prescription in case or something else. The answer was no….whenever it happens, it`s an automatic trip to the hospital as they need to do a CT scan to determine what it is…..it could be another pleurisy or could be a heart attack or something else
5. He told me that a pleurisy is very painful but does not damage the lung and that I am lucky (for now) that it`s the only organ affected by lupus…..oh joy!!!!!
6. Asked about the results of D-Dimer (from blood test) as it should be below 500 and I was at 3 700 and this is related to blood cloths but ruled out pulmonary embolism and deep vein thrombosis. His answer was ''it has nothing to do with the lupus or arthritis so not my area'' …wonderful!
Prednisone is working well….still sleeping in a sitting position but I can sleep a whole night uninterrupted by pain
Can`t wait to get a good night`s sleep in my regular sleeping position!Next week….GP appointment
More to come.….hopefully no more new meds…..or I will open my own pharmacy!