Health Boards
Tue-02-03-2021, 02:14 AM
February 27th - 28th
Went to sleep at my parents with my daughter to have a small girls day out of retail therapy the next day, get a nice beaver tail treat, etc.
Well....instead....ended up in the ER the whole night and next morning till about noon
What happened? Same as 2018 but way worse!
Chest pain on the right side to the point of being unable to lie down, lie back or sit. Every breath hurt like crazy ….. never experienced pain like this, dilaudid wasn't even working
Soooo off to the hospital I go (in my pjs and mukluks....very sexy) ....before mum decides to call an ambulance.
Did an ECG test....which they had trouble to do because I had to lie down for that and was squirming in pain....so much she left the stickers there in case she had to redo it
Chest XRay
Blood tests....in the hand again as they can't seem to find my veins in my arms
Covid Test (I didn't know they could to that deep with a swab!)
Port installed in the left hand (smaller port because it's in the hand and again because they can't find veins in my arms)
Was given through port, pain medication, something to thin the blood in case there was a blood cloth
After the pain medication, was able to sit at least and breathe a little better.
Nurse on the next shift installed a bigger port in the right hand (the other one was too small to pass a CT scan)
They gave me more pain medication around 7 am as I was walking in circles in the ER with tears in my eyes.
Went for a CT scan which again, was difficult because I had to lie down.
Result....same as before...pleurisy due to lupus.
More prednisone
I love that drug....I feel great on it but I know it's not good!
Was experiencing pain for about two weeks prior but it is difficult to determine why (i.e. could be muscular) and sometimes it got better.....guess I waited too long
Prednisone is starting to work....I can lie down (with a bunch of pillows in my back and get a few hours sleep if I take dilaudid)….thank god I had taken today off from work.
So I have an emergency appointment tomorrow with my rheumy. I need to know if:
1. I can continue Simponi
2. maybe increase azathioprine dosage (that is for lupus and he had reduced the dosage from 100 mg to 50 mg when I had started Cosentyx in 2018)
I will book an appointment with my GP next week (she is off this week due to March break) to know if:
1. I can get a prednisone prescription in case of emergencies like this.....I do NOT want to go through this again
2. Maybe get referred to a nutritionist
More to come! But I feel like I am falling apart.....haven't reached half a century yet!
Went to sleep at my parents with my daughter to have a small girls day out of retail therapy the next day, get a nice beaver tail treat, etc.
Well....instead....ended up in the ER the whole night and next morning till about noon
What happened? Same as 2018 but way worse!
Chest pain on the right side to the point of being unable to lie down, lie back or sit. Every breath hurt like crazy ….. never experienced pain like this, dilaudid wasn't even working
Soooo off to the hospital I go (in my pjs and mukluks....very sexy) ....before mum decides to call an ambulance.
Did an ECG test....which they had trouble to do because I had to lie down for that and was squirming in pain....so much she left the stickers there in case she had to redo it
Chest XRay
Blood tests....in the hand again as they can't seem to find my veins in my arms
Covid Test (I didn't know they could to that deep with a swab!)
Port installed in the left hand (smaller port because it's in the hand and again because they can't find veins in my arms)
Was given through port, pain medication, something to thin the blood in case there was a blood cloth
After the pain medication, was able to sit at least and breathe a little better.
Nurse on the next shift installed a bigger port in the right hand (the other one was too small to pass a CT scan)
They gave me more pain medication around 7 am as I was walking in circles in the ER with tears in my eyes.
Went for a CT scan which again, was difficult because I had to lie down.
Result....same as before...pleurisy due to lupus.
More prednisone
I love that drug....I feel great on it but I know it's not good!Was experiencing pain for about two weeks prior but it is difficult to determine why (i.e. could be muscular) and sometimes it got better.....guess I waited too long
Prednisone is starting to work....I can lie down (with a bunch of pillows in my back and get a few hours sleep if I take dilaudid)….thank god I had taken today off from work.
So I have an emergency appointment tomorrow with my rheumy. I need to know if:
1. I can continue Simponi
2. maybe increase azathioprine dosage (that is for lupus and he had reduced the dosage from 100 mg to 50 mg when I had started Cosentyx in 2018)
I will book an appointment with my GP next week (she is off this week due to March break) to know if:
1. I can get a prednisone prescription in case of emergencies like this.....I do NOT want to go through this again
2. Maybe get referred to a nutritionist
More to come! But I feel like I am falling apart.....haven't reached half a century yet!