Health Boards
Sun-11-10-2020, 21:10 PM
OK….updating my neglected journal!
I have been feeling like I have been in a constant flare up for the past month and a half which caused trouble walking, going up or down the stairs, lifting things, opening jars, swollen fingers or the whole hand, sleepless nights and a few tears when combining the pain and tiredness
So I had an appointment with the rheumatologist on September 16 and he finally listened when I said Cosentyx wasn`t working for me.
By not working, I mean for the psoriatic arthritis as I never saw any improvements. I was 100% clear of psoriasis until about two weeks ago.
I think it wasn`t improving my PSA, just keeping it from getting worse and now completely failed.
The appointment:
I was totally unprepared for…..my rheumatologist basically looked at me and said ok….what do we try next…..If I would have known, I would have looked up what was available in Canada (my bad)…. will be prepared if what he prescribed doesn`t work.
He saw the look on my face and back peddaled and simply said patients usually suggest the treatment. OK...but in my view, he knows what I have tried and what should be the next best step….but anyway….
He didn`t want to try oral medication like Otezla so he prescribed Simponi….back to TNF
The side effects seem scarier than the other biologics I have tried but…..I will try ANYTHING at this point.
Took my first injection on October 6th!
No side effects so far
The other TNF I had tried and not very long was Humira….had to stop as my face swelled up a lot. Hopefully this won`t happen this time around.
I do have an appointment with my GP to discuss:
1. Better pain medication as what I have right now is not strong enough when I am in agony and can`t sleep
2. I am suspecting a possible repeat of my 2018 incident but with liquid around the left lung only (not the heart) as my left side has been bothering me for three weeks now….I will ask for Xrays to rule that out
3. Obtainig a medical note/certificate as I need a valid justification to pull my daughter out of school so she can continue virtually given that the covid situation is getting worse in our region
Fingers crossed!
I have been feeling like I have been in a constant flare up for the past month and a half which caused trouble walking, going up or down the stairs, lifting things, opening jars, swollen fingers or the whole hand, sleepless nights and a few tears when combining the pain and tiredness
So I had an appointment with the rheumatologist on September 16 and he finally listened when I said Cosentyx wasn`t working for me.
By not working, I mean for the psoriatic arthritis as I never saw any improvements. I was 100% clear of psoriasis until about two weeks ago.
I think it wasn`t improving my PSA, just keeping it from getting worse and now completely failed.
The appointment:
I was totally unprepared for…..my rheumatologist basically looked at me and said ok….what do we try next…..If I would have known, I would have looked up what was available in Canada (my bad)…. will be prepared if what he prescribed doesn`t work.
He saw the look on my face and back peddaled and simply said patients usually suggest the treatment. OK...but in my view, he knows what I have tried and what should be the next best step….but anyway….
He didn`t want to try oral medication like Otezla so he prescribed Simponi….back to TNF
The side effects seem scarier than the other biologics I have tried but…..I will try ANYTHING at this point.
Took my first injection on October 6th!
No side effects so far
The other TNF I had tried and not very long was Humira….had to stop as my face swelled up a lot. Hopefully this won`t happen this time around.
I do have an appointment with my GP to discuss:
1. Better pain medication as what I have right now is not strong enough when I am in agony and can`t sleep
2. I am suspecting a possible repeat of my 2018 incident but with liquid around the left lung only (not the heart) as my left side has been bothering me for three weeks now….I will ask for Xrays to rule that out
3. Obtainig a medical note/certificate as I need a valid justification to pull my daughter out of school so she can continue virtually given that the covid situation is getting worse in our region
Fingers crossed!