Otezla and rash

[jiml]

Had to come off it in the end. Going to the toilet 7 or 8 times a day. It got worse not better.
My skin was starting to look good. Even my joints felt better than ever.
I even ended up with slight swelling in my lower legs. Just had to come off it. I gave it 1 hell of a go but went through hell and back. I really wanted them to work.
Back to Hospital this week. Limited to oral as I have high blood pressure and drink

Hi Duncan I agree you gave it a good try and the sad thing is that it worked but caused so many other problems
Can I suggest when seeing the dermatologist this week that you ask about skilarence it's the same drug that I'm on but licenced and approved for use here in the UK I find it keeps the plaques clear and the psoriatic arthritis to just the odd twinge
It's not always the easiest drug to take (I won't sugar coat it) at the start you can have bad side effects and running to the loo is one of them abdominal cramps and flushing are also common at the start of treatment . The side effects if you get them do get better as your body adjusts....but and it's a big but.... if it works as it has for me and lots of other people it can give you long term clearance (for me 7 yesrs to date ) I would say worth a try if they let you try and with monitoring it's a very safe drug ...I rarely get ill when there's infections about just get the odd cold and haven't had any side effects apart from the odd flush for years

I hope you get something that works well for you without too many side effects

I was looking at Skilarene as my next choice. Only down side I can see is, 1 in 10,000 bet blood cancer. rather have bad skin than that.
Very low odds but so was getting a rash from Otezla, but I was the one who got it

I think the risk is so low and with monitoring of your blood levels as I have done if any abnormalities are seen they should be able to rectify with dose adjustment or cessation
But it's up to you I think the risks are way lower than those of methotrexate
See this post what Biogen that make fumaderm the same active ingredient as skilarence had to say when I asked about cancer  RE: Fumaderm and hormone injections