Tue-11-06-2019, 14:40 PM
(This post was last modified: Tue-11-06-2019, 14:40 PM by Kat. Edited 1 time in total.)
Adding this picture for reference to my complaints:
![[Image: VQPonyo.jpg]](https://i.imgur.com/VQPonyo.jpg)
I think because what is visible are small areas, even I have a difficult time remembering that this is all through my scalp. Picture was taken today as I was sitting here posting and scratching. After brushing off shoulders if I scratch for 5-10 minutes that's what it looks like. And worse in the early morning as it's had overnight to build up so mornings are always a scratchfest. That's actually the upper front of my shirt, the top around the neck gets even worse.
And I always look about like that
Well some days better but some days are also worse. The only difference is that when I go somewhere, I wear a light colored shirt so it's not as noticeable and I brush my shoulders off often so they can't just keep accumulating on my clothing.
I know that many of you relate (some of you are probably even saying it's not that bad and I understand that in a lot of ways I got off lucky with this awful disease) but this is an "out in public" time for me and I guess with that adding to being uncertain how to proceed right now, it's just getting to me a bit.
![[Image: VQPonyo.jpg]](https://i.imgur.com/VQPonyo.jpg)
I think because what is visible are small areas, even I have a difficult time remembering that this is all through my scalp. Picture was taken today as I was sitting here posting and scratching. After brushing off shoulders if I scratch for 5-10 minutes that's what it looks like. And worse in the early morning as it's had overnight to build up so mornings are always a scratchfest. That's actually the upper front of my shirt, the top around the neck gets even worse.
And I always look about like that
Well some days better but some days are also worse. The only difference is that when I go somewhere, I wear a light colored shirt so it's not as noticeable and I brush my shoulders off often so they can't just keep accumulating on my clothing.I know that many of you relate (some of you are probably even saying it's not that bad and I understand that in a lot of ways I got off lucky with this awful disease) but this is an "out in public" time for me and I guess with that adding to being uncertain how to proceed right now, it's just getting to me a bit.


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