Health Boards
Sat-09-09-2017, 11:55 AM
Ok so here is my latest update on my treatment with cosentyx. Which I started in December, after six years on oral methotrexate.
In January I started experiencing severe stomach pain. This led to various investigations, as symptoms worsened and new symptoms appeared. I had a gastroscope ( camera into stomach ) which found Gastritis, I had none of the usual causes for this i.e. use of NSAIDs, and I am negative for Halibactor pylori bacteria. I have bile reflux into the stomach too. Also since January my bloods tests each month were going down in heamoglobin and ferritin. I had a ferritin level of 5 ( should be between 100-400 ) and vitamin D of 13 ( should be over 50 ). I had an emergency iron infusion. My liver shows raised gamma GT blood test too. I have had CT scans of chest, abdomen, and a CT colonography because they suspected a GI bleed, no bleed was found.
In meantime I have lost 35lbs in weight. I have zero energy, my hair is falling out probably because of iron deficiency anaemia. My dermatologist is concerned that th cosentyx maybe causing these symptoms with stomach, and it has been reported to norvartis on the yellow card scheme as it is a black Triangle drug. I have three hospital consultants now on my case and they ar considering switching me to stellara. I have my next appointment this Thursday. My psoriasis is breaking through again now, after nine months on treatment. I do not wish to put anybody off trying this drug, but I think it is important to share as much knowledge as we can. Plus I was asked to keep you all updated.
I do hope that everybody is doing well, and Fred please move this to another thread or topic if I have posted it in the wrong place. I am not that great at knowing where to put my posts!
In January I started experiencing severe stomach pain. This led to various investigations, as symptoms worsened and new symptoms appeared. I had a gastroscope ( camera into stomach ) which found Gastritis, I had none of the usual causes for this i.e. use of NSAIDs, and I am negative for Halibactor pylori bacteria. I have bile reflux into the stomach too. Also since January my bloods tests each month were going down in heamoglobin and ferritin. I had a ferritin level of 5 ( should be between 100-400 ) and vitamin D of 13 ( should be over 50 ). I had an emergency iron infusion. My liver shows raised gamma GT blood test too. I have had CT scans of chest, abdomen, and a CT colonography because they suspected a GI bleed, no bleed was found.
In meantime I have lost 35lbs in weight. I have zero energy, my hair is falling out probably because of iron deficiency anaemia. My dermatologist is concerned that th cosentyx maybe causing these symptoms with stomach, and it has been reported to norvartis on the yellow card scheme as it is a black Triangle drug. I have three hospital consultants now on my case and they ar considering switching me to stellara. I have my next appointment this Thursday. My psoriasis is breaking through again now, after nine months on treatment. I do not wish to put anybody off trying this drug, but I think it is important to share as much knowledge as we can. Plus I was asked to keep you all updated.
I do hope that everybody is doing well, and Fred please move this to another thread or topic if I have posted it in the wrong place. I am not that great at knowing where to put my posts!