Health Boards
Mon-13-02-2017, 02:14 AM
So, last time I posted that I was somewhat better, although my feet were still having a rough go of it. When I saw my dermatologist in late December, he recommended I stop the Otezla. My feet were actually much worse...I guess having such severe psoriasis on the bottom of my feet, combined with the side effects of peeling feet caused by the Otezla, made him decide it was time to stop and to try something new.
I just got approved for a trial of Stelara (ustekinumab) - geez, where do they come up with these names? But in between seeing him and going to get my first shot of Stelara, I saw a specialist at the arthritis clinic, who suggested that with all the infections I get, Stelara might not be the best suggestion for me.
So, now I am torn between going for my first shot, or holding off and seeing what the arthritis doc is on about. He did suggest a newer biologic, but he has no resources for me to get on a trial (like my dermatologist does, who is always involved with one drug or another in a clinical trial). I feel like a 61 year old guinea pig that they are simply experimenting with.
So, now I don't know what to do. I have to cancel my appointment for the Stelara injection by Tuesday or else pay $150 for the appointment. I jumped on here tonight to see what I could find out about it and am now going to go search. If someone has direct experience,please let me know. Just so you know, I have been hospitalized at least three times for sepsis, usually from cuts on my feet, but once for a cut on my hand. All the cuts are from the plaque psoriasis. I seem to get ifnections quite easily. I am always the first with a cold in my house, and three days ago, came down with something called pink eye. Only now, it's pink EYES, and they are way more red than pink, with horrible pain, watering'tears constantly, itching that makes me want to scratch them out, and swollen so much that I am unrecognizable. There is also a discharge that cakes them over when I am sleeping. I have been on an antibiotic, but the doc said that if it didn't clear in a day or two, it was probably "viral" and that antibiotics wouldn't help it....I would just have to "wait it out".
Hmm, just writing that makes me realize that I had better at least postpone the Stelara injection, as I doubt this eye infection will be gone by then. He said it typically takes one to two weeks to clear if it is viral rather than bacterial.
Can I scream here? ARRRRRGHHHHHH!!!!!!
phew...that felt better. Thanks for listening.
I just got approved for a trial of Stelara (ustekinumab) - geez, where do they come up with these names? But in between seeing him and going to get my first shot of Stelara, I saw a specialist at the arthritis clinic, who suggested that with all the infections I get, Stelara might not be the best suggestion for me.
So, now I am torn between going for my first shot, or holding off and seeing what the arthritis doc is on about. He did suggest a newer biologic, but he has no resources for me to get on a trial (like my dermatologist does, who is always involved with one drug or another in a clinical trial). I feel like a 61 year old guinea pig that they are simply experimenting with.
So, now I don't know what to do. I have to cancel my appointment for the Stelara injection by Tuesday or else pay $150 for the appointment. I jumped on here tonight to see what I could find out about it and am now going to go search. If someone has direct experience,please let me know. Just so you know, I have been hospitalized at least three times for sepsis, usually from cuts on my feet, but once for a cut on my hand. All the cuts are from the plaque psoriasis. I seem to get ifnections quite easily. I am always the first with a cold in my house, and three days ago, came down with something called pink eye. Only now, it's pink EYES, and they are way more red than pink, with horrible pain, watering'tears constantly, itching that makes me want to scratch them out, and swollen so much that I am unrecognizable. There is also a discharge that cakes them over when I am sleeping. I have been on an antibiotic, but the doc said that if it didn't clear in a day or two, it was probably "viral" and that antibiotics wouldn't help it....I would just have to "wait it out".
Hmm, just writing that makes me realize that I had better at least postpone the Stelara injection, as I doubt this eye infection will be gone by then. He said it typically takes one to two weeks to clear if it is viral rather than bacterial.
Can I scream here? ARRRRRGHHHHHH!!!!!!
phew...that felt better. Thanks for listening.