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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,522
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#11
Fri-29-11-2013, 19:25 PM
Hello Justin,
Welcome to the forum.
Seems you are a motorcyclist! We will have fun then !

Regarding what Jim said, beware of methotrexate, to my idea it is awful stuff. Fumaderm is a lot better. MTX is often used in cancer treatments.
I found my luck after leaving the ideas of dermatologist and rheumatologist behind me and talking to a GP specialized in auto immune diseases and with a broad mind being able to think out of the box, so now I am using DMF, in a different form than fumaderm, and that has a very good result.

Have fun reading through the forum, it is packed with useful and senseless information.

Cheers,
Caroline.
mataribot Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,339
Threads: 38
Joined: Jun 2013
Gender: Male
Location: USA
Treatment: >_<
#12
Sat-30-11-2013, 07:08 AM
Welcome to the forum! I thought I would never rid of my P, but now a have very little left. As fate would have it, my PsA is out of control My advice on medication -

The first thing you should do before taking medication is to forget the side effects. However, after taking the medication, the last thing you should do is forget the side effects.

Remember, stress and anxiety will more than likely make the disease worse. I don't care what miracle drug you are on, if you have endless anxiety over the side effects, your condition will never get better. However, you know your body better than anyone else- if you feel like something is wrong, it probably is. I hope that helps some.
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,522
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#13
Sat-30-11-2013, 09:15 AM
(Sat-30-11-2013, 07:08 AM)mataribot Wrote: - if you feel like something is wrong, it probably is. I hope that helps some.

Very good approach Mataribot !
Thumb
KyPrincess Offline
I'm a little flakey

100 + Member I Just Cant Stop !
Posts: 408
Threads: 9
Joined: Jan 2012
Gender: Female
Location: Danville, Kentucky
Treatment: Triamcinolone Acetonide Cream, Methotrexate
#14
Tue-03-12-2013, 20:35 PM
Hello Justin. Welcome to the forum.
Troll Offline
I can see you in the dark.

100 + Member I Just Cant Stop !
Posts: 527
Threads: 12
Joined: Sep 2011
Gender: Female
Location: On the fence
Psoriasis Score: 32
Treatment: Sandpaper
#15
Sat-07-12-2013, 13:29 PM
Belated hello Justin Wave
Justin-UK Offline Author
Member


Posts: 18
Threads: 3
Joined: Nov 2013
Gender: Male
Location: UK
Psoriasis Score: 28
Treatment: phototheropy
#16
Wed-11-12-2013, 20:35 PM
Just rocking up to week 3 on my photopherapy treatment, it doesn't really seen to be doing anything but guess I'd better stick it out. New bits keep coming all the time Angry had another little cry as can no longer hide it from the outsiders, bloody happy people! Flair up on my hands on face, I now look like a giant dot to dot.
How's everyone else getting on treatment wise? Anyone else feel like its a losing battle?
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#17
Wed-11-12-2013, 20:56 PM
(Wed-11-12-2013, 20:35 PM)Justin-UK Wrote: Just rocking up to week 3 on my photopherapy treatment, it doesn't really seen to be doing anything but guess I'd better stick it out. New bits keep coming all the time Angry had another little cry as can no longer hide it from the outsiders, bloody happy people! Flair up on my hands on face, I now look like a giant dot to dot.
How's everyone else getting on treatment wise? Anyone else feel like its a losing battle?

Don't give up Justin it's early days yet, try to keep positive I know it's difficult but it helps . How long are you getting? And how long have they told you the course of treatment will last.

In the summer when you get out in the sun did that help. If it did phototherapy should work for you.
It's a bastxxd trying to hide it especially if you have it on your face and hands. I'm sure it's not a losing battle stay strong and fight it with positivity.Im off to see my dermatologist Friday I think she will cut my tablets down to see if I stay clear on a lower dose. But I'm ready for a fight Thumb
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,984
Threads: 3,889
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#18
Wed-11-12-2013, 21:19 PM
(Wed-11-12-2013, 20:35 PM)Justin-UK Wrote: Just rocking up to week 3 on my photopherapy treatment, it doesn't really seen to be doing anything but guess I'd better stick it out. New bits keep coming all the time Angry had another little cry as can no longer hide it from the outsiders, bloody happy people! Flair up on my hands on face, I now look like a giant dot to dot.
How's everyone else getting on treatment wise? Anyone else feel like its a losing battle?

Hello Justin, yep felt many a time it's a losing battle and also shed many a tears. And it wasn't till almost 30 years after first getting psoriasis I got my life back thanks to my current dermatologist.

Bloody happy people, I can relate to that too. I used to hate seeing people happy when my life was in ruins, but one day I found out that my life could be a lot worse than it is when I got news that a close friend had died. I changed my outlook on life and didn't give a toss about what others thought about me, I was alive and if they didn't like the way I looked they could go and F***k themselves.

Life's to short to be concerned what others think, we are not all perfect and the consolation is "Psoriasis Can Strike Anyone At Any time"

Keep talking and keep sharing mate, it will help. And dont give up hope, one day something will work for you and there is a lot more in the way of research and treatments these days than there ever was. Smile

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