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8 year old daughter-desperately looking for help

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8 year old daughter-desperately looking for help
imassin Offline
Newbie


Posts: 1
Threads: 1
Joined: Feb 2016
Gender: Female
Location: sint truiden
Treatment: nothing
#1
Mon-01-02-2016, 14:06 PM
Hi, my name is Inge and I'm from Belgium. I have an 8 year old daughter Nore.
When she was 4 years old she had, after the separation from me and her father, a first time psoriasis. The dermatologist immediately asked if Nore had experienced something emotionally . We got all kinds of ointments prescribed with cortisone. Over the last 4 years she got some scabs on her head and face, not heavy till last december. It started with a spot here and there but during the holidays it got much heavier. Head, face, , back, sides, belly and legs. This is accompanied by severe itching this time. I don't want to use cortisone. 
Does anyone here has a child that has psoriasis? Does anyone have some advice...again, I do not want to use cortisone. Thanks a lot for your help!
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#2
Mon-01-02-2016, 14:17 PM
Hi Inge and Welcome to the forum I'm sorry I don't have any advice regarding children with psoriasis and I can understand your reluctance to use cortisone
If you look in natural treatments there is a thread on the right foods to eat, I will look for some links for you but I may be a short while as I'm out at the moment
I'm sure someone will give a better answer soon
Jim Thumb
Caroline Offline
You must hurry if you ever want to catch a chicken...
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Posts: 26,522
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Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#3
Mon-01-02-2016, 14:25 PM
Hi Inge,

Welcome to the forum.
I am so concerned that your child Nore has psoriasis that early already in her life.
Surely I can imagine that you do not want to continue on ointments anymore at a certain point.

The trouble is that dermatologists will follow a full protocol of steps, along for instance UV treatments to other medication. UV treatments for a your child are obviously bad, so I can advise you to be very resistant to that if your dermatologist suggests that.

In the Netherlands is some knowhow on medication to use with children, do you speak Dutch by the way? Oh, I see already, you are on the Dutch/French division line of Belgium . Smile

One thing additional, using coconut oil can help against the itching and is harmless.


Cheers,
Caroline
Kat Offline
Take my advice; I don't use it anyway.
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Posts: 9,829
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Joined: Aug 2014
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Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#4
Mon-01-02-2016, 19:08 PM
I don't blame you for not wanting to use cortizone. As Caroline said, coconut oil can help moisterize which helps with the itchiness. This is a great place for looking at what treatments are available. I'd ask her dermatologist and then check into the ups and downs and the side effects of what he or she recommends. I didn't have psoriasis as a child so afraid there isn't much info I can offer. I hope your daughter gets relief soon, that itching is no fun at all.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#5
Mon-01-02-2016, 20:38 PM
Hi again Inge here are just a few threads to look at as they are natural. You may have already read them but I will list them in case you haven't
The anti-inflamatory food pyramid
Vitamin D the natural way.
Getting better thru my Diet.
How I repaired my body

There might be something to interest you here
Good luck with your search
Jim Thumb
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 66,984
Threads: 3,889
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#6
Mon-01-02-2016, 21:48 PM
Hello Inge  Welcome to Psoriasis Club.

I'm a big fan of Coconut Oil too, it won't cure but it can help with the itching. As you're in Belgium you should be able to get hold of Dexeryl that could be worth a try.

We have also recently had another new member posting on behalf of Her Child, it could be worth you posting on her thread Scared parents of a 7 years old with psoriasis

Regards.

Fred.
Victoria1407 Offline
Novice


Posts: 5
Threads: 1
Joined: Nov 2015
Gender: Female
Location: West Yorkshire
Treatment: Uvb/topical/still looking
#7
Tue-01-03-2016, 08:53 AM
Hi, sorry to hear of your troubles with your daughter.  My son started with psoriasis when he was just 11, so I understand some of your anxiety.  His really flared up badly when he started senior school, I think he must have had it before a little bit when I look back but it wasn't diagnosed, and the stress of a new school triggered it.  I could talk about what hasn't worked, but that's not so helpful really.  What does seem to have finally worked is a combination of a course of UVB treatment and dietary supplements of omega 3 oil, milk thistle, vitamin D, zinc and a probiotic.  We paid for him to see a nutritionist who ran a test to see what he was intolerant to some foods, most notably sugar and carbonated drinks which we have subsequently reduced (although he didn't have too much of either of these before). 

There are people who will warn against UVB treatment, however there is a certain amount anyone can have in a lifetime and also I have recently heard information that there is no increased risk of skin cancer and that lifetime limits on the amount of treatment are to be changed.

What we don't know is whether the psoriasis would have improved anyway now he is settled in to school and isn't so worried about it.

Try not to worry too much, I know it's difficult but I think my worrying about it so much contributed to him stressing about it as well, even though I tried to hide it from him.  Take care.

Vicky

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