My Cosentyx journey begins

[Kat]

Great news!!

[Bobw]

hello y'all,

I too have been on Cosentyx. It took forever to get the insurance company to pre-approve it. My 5th weekly injection was April 24, and I will be on the 300mg maintenance now every 4 weeks. As 32092 wrote, the drug is as advertised. It works.....
I had been on Enbrel for several years, but having developed Stage 4 melanoma last April, I had to avoid live biologics, and Cosentyx is safer to use.
I truly hope some of you will have similar success as 32092 and I have had. The worst issue I had was the getting ready to self inject double 150mg pens once per week, and after Enbrel, that was easy. Absolutely no side effects and no regrets.
I hope this blog will go away really soon when each of us, and all new sufferers finally get the cure we have waited for so many years becomes a reality.
Thank each of you for your support to me, 32092 and everyone who visits..
Bob
Charleston, South Carolina

[jiml]

Hi Bob and welcome back, with great news that Cosentyx is working well for you
Thanks for coming back and telling us, I'm hoping you continue with the success, and hope the cancer has been held back for you.
I agree that it would be great if a cure could be found, but I won't hold my breath

[Fred]

hello y'all,

I too have been on Cosentyx.   It took forever to get the insurance company to pre-approve it.  My 5th weekly injection was April 24, and I will be on the 300mg maintenance now every 4 weeks.  As 32092 wrote, the drug is as advertised.  It works.....
I had been on Enbrel for several years, but having developed Stage 4 melanoma last April, I had to avoid live biologics, and Cosentyx is safer to use.  
I truly hope some of you will have similar success as 32092 and I have had. The worst issue I had was the getting ready to self inject double 150mg pens once per week, and after Enbrel, that was easy.  Absolutely no side effects and no regrets.  
I hope this blog will go away really soon when each of us, and all new sufferers finally get the cure we have waited for so many years becomes a reality.
Thank each of you for your support to me, 32092 and everyone who visits..      
Bob
Charleston, South Carolina

Hello Bobw don't hesitate to start your own thread in Psoriasis And Psoriatic Arthritis Topics if you would like to share your experience of Cosentyx, the more we get the better and our readers can gain genuine unbiased information from users.

When you say "This Blog" I'm taking it you mean Psoriasis Club? But when you also say it will go away when we all have a cure, there will never be a 100% cure that fits all and whilst I'm here Psoriasis Club will Never go away.

[bav101]

hello y'all,

I too have been on Cosentyx.   It took forever to get the insurance company to pre-approve it.  My 5th weekly injection was April 24, and I will be on the 300mg maintenance now every 4 weeks.  As 32092 wrote, the drug is as advertised.  It works.....
I had been on Enbrel for several years, but having developed Stage 4 melanoma last April, I had to avoid live biologics, and Cosentyx is safer to use.  
I truly hope some of you will have similar success as 32092 and I have had. The worst issue I had was the getting ready to self inject double 150mg pens once per week, and after Enbrel, that was easy.  Absolutely no side effects and no regrets.  
I hope this blog will go away really soon when each of us, and all new sufferers finally get the cure we have waited for so many years becomes a reality.
Thank each of you for your support to me, 32092 and everyone who visits..      
Bob
Charleston, South Carolina

Hello Bobw don't hesitate to start your own thread in Psoriasis And Psoriatic Arthritis Topics if you would like to share your experience of Cosentyx, the more we get the better and our readers can gain genuine unbiased information from users.

When you say "This Blog" I'm taking it you mean Psoriasis Club? But when you also say it will go away when we all have a cure, there will never be a 100% cure that fits all and whilst I'm here Psoriasis Club will Never go away.

I think maybe one day there will, but it will involve genetic manipulation in some way. It'll either cure or turn you into a brain munching zombie.

[angel-1963]

This is encouraging to be reading positive results with Cosentyx...minimal side effects if any!   I start my Cosentyx journey, I do believe, next week on 7/9/2015.   I will start a new thread if this is the case.   I am afraid of the unknowns a little bit as this has only been in trials for what, 2 or 3 years before FDA approval??   I have health insurance through my company...of course this drug is excluded.   I was told I will get 5 weeks to start up and then 6 months after that (Cosentyx dose one time per month).   Not really sure what happens after that...they make it sound vague...but tell me not to stress.   Hmm!   Keeping fingers crossed all this goes smoothly!!

[mataribot]

The dosing of Cosentyx is 300mg (two shots) at 0, 1, 2, 3, and 4. Then 150-300 mg every month afternoon. If your insurance covers the drug, the patient assist program will aggressively fight for your medication. They will actually call with you one the line. The co pay card is nice, it's something close to 16 grand for 10 months.

[angel-1963]

Wow.....16 grand for 10 months.  Amazing.    Yes, I have health care insurance through my company but this drug remains EXCLUDED for awhile I bet.    My fear is...yes, I do the start up and then I was told 6 additional months.    Then after that it sounds like a GRAY area to me which has me very, very stressed out and worried.   My doctor's office said..."Oh, you will be put on Humira."   That is not what I want to hear!    Ugh.

[mataribot]

Once the application is filled out, you will assigned a patient liaison from Norvartis. My suggestion is to call her. There is a provision in the ACA that allows them to switch TNFs to a cheaper one, but it requires the doctor to agree to it. The problem is that Consentyx isn't a TNF. Regardless the doctor has to agree to the change and inform you of it.

[Turnedlight]

Wow this cosentyx sounds good, hope the improvements continue.

I reckon there will be a cure or at least a prevention one day, after all, there are people who have normal skin - 'all' we have to do is find out how to stop the thing which is happening differently in people with P and how to make our skin behave like theirs. (As you can tell, I'm very scientific )