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Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
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This is getting silly now....

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This is getting silly now....
JustJess Offline Author
Member


Posts: 25
Threads: 5
Joined: Oct 2011
Gender: Female
Location: East Midlands, UK
Psoriasis Score: 36
Treatment: Dovobet, Xamiol, and buckets of Double Base!
#21
Fri-02-12-2011, 15:35 PM

I'll wear one too and come with you Wink


[/quote]

BERKINI!!! Love it! LMAO x
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JustSuzy Offline
Member


Posts: 96
Threads: 17
Joined: Oct 2011
Gender: Female
Location: Texas
Psoriasis Score: 62
Treatment: OTC's
#22
Fri-02-12-2011, 23:51 PM
I would go if I had it to do-over! We probably would quickly get the pool to ourselves! And I might even end up suing anyone who tried to stop me!
Just do it! Put a t-shirt over the bathing suit if it helps you feel better.

World psoriasis day should include everyone going out showing their spots at pools,beaches,etc. It would be amazing to have the support of all other sufferers as all the newscasts reported on the spotted people coming out of the closet and educating the ignorant people of the world.
Once folks get over the staring and gawking they normally go back to their self centered natures and don't pay anyone else any attention.
I am seriously thinking about a t-shirt that says "Got psoriasis?"
Maybe next halloween I will wear tiny shorts and a tank top and paint all my spots black and add a few and go as spottedwoman,lol.
Suzy....aka spottedwoman
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Krissie_Wright Offline
Psoriasis Survivor & Domestic Goddess


Posts: 76
Threads: 5
Joined: Mar 2012
Gender: Female
Location: Aberdeenshire, Scotland
Psoriasis Score: 41
Treatment: Dovonex/Dovobet/Methotrexate
#23
Tue-20-03-2012, 23:41 PM
Hi Jess,

I'm new to this forum and have spent the past 5 minutes reading through this thread and just wanted to add some words of encouragement and support.

I've lived with psoriasis since I was 4 years of age. Neither of my parents have the condition but my maternal grandmother did and that's probably where I inherited it from... My brother has had it since his teens but only on his scalp and my youngest sister has developed a couple of small patches on her elbows just recently (in her mid 20's).

During my life I have been where you are, mainly in my teen years, covering up from head to toe even in the height of summer, angry because I was the only person to have the stupid flaky skin. Depressed because I could see other teenage girls and women out in nice little vest tops and hotpants in the summer while I was limited to jeans and long sleeves. Depressed because of the nasty things kids at school would say to me about my skin.

When I got a little older I moved away from home to go to uni and was well and truly out of my comfort zone as I had nobody around who knew about my condition or anyone to support me when I was feeling low. I avoided situations where my patches would be seen, giving up many of the sports I did as a teenager. A chance conversation with a lad in the common room at uni changed my perspective. He had noticed my skin in passing and struck up a conversation with me about it. I found that explaining it to people was empowering, so much so that I got very comfortable wearing what other girls around me were wearing and educating people on the condition when they asked (adults are good like that, they ask questions rather than pick on you like kids/teens do).

I grew in confidence thanks to that lad... My psoriasis at times has covered up to 95% of my body (with the exception of my hands and face although I have it at my hairline) and been dry, cracked, painful to touch etc. but I refuse to let it define who I am.

Like you I have a daughter who loves swimming and at first I was very self conscious about taking her because I didn't want to feel like everyone was staring at me... Believe it or not, people don't stare, they are too busy doing laps or looking after their own kids. I happily lie in my garden and sunbathe (during that one day of the year where Aberdeenshire has a temperature above 15oC and no cloud cover Big Grin) my neighbours are all new (live in a new estate) but not one has ever mentioned my skin.

As for relationships... well, you can take it from me that people see past the psoriasis to the person you are... I have a wonderful husband who says that he never sees my patches and my daughters father never had any issue with it either.

Becoming comfortable with having psoriasis took me a long time (about 15 years) and I know that it may sound a little trite but one day you will reach the place I am at now. It's a long path but a good support network, good friends who understand and listen to you rant/cry/laugh about the condition help. If you can find a support group in your area I would recommend that you pop along to a meeting and meet others in the same situation as you.. Most dermatology clinics will have details.

Also, get a good dermatologist. That will make a big difference to any treatment you get, GP's are great but they are not specialists.

Hugs...

Krissie
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Unity4Peacellc Offline
Newbie


Posts: 4
Threads: 1
Joined: Aug 2012
Gender: Female
Location: Kentucky
Treatment: BlueStar Ointment
#24
Thu-30-08-2012, 23:07 PM
I am new to the forum but I have some relative feelings I once had that were similar to yours. I will write them down tonight and share them tomorrow. That was before i found something to work. Which is what I will also share tomorrow, as I do not want to go off topic. I hope that you will find this post and read it and know that there may be some help coming to you soon, if you have not already received it.

Sincere regards,

Beka
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