Psoriasis/Psoriatic Arthritis is the bane of my existence.

[flecksable_flyer]

Hello, fellow flakeys. Long-time sufferer here. Psoriasis and psoriatic arthritis has definitely made a dent in my life. I'm finally in somewhat of a remission, but I tend to develop a tolerance to meds over time. At least with all of the new meds they keep coming up with, it leaves me options for finding new ones.

I used to be married, lived on a farm, and took care of kids, cats, dogs, horses, sheep, rabbits, and a few chickens while working as a kennel attendant in a veterinarian's office. Now I'm divorced, unemployed, on disability, and live in a tiny house with a roommate and her kid. 

I do have two dogs, but I lost my two cats in the last couple of years and haven't found new ones that need homes yet.

I'm finally back to my favorite hobby (cross-stitch) after a bad flare starting last year. The Cosentyx has done wonders, but I'll never be as active as I once was. I've learned to slow down, but it hasn't been easy. 

I hope everyone is doing well and finding what treatment works best for them. Take care and I'll see you around.

[Caroline]

Hello Flecksable_flyer,

Welcome to Psoriasisclub.
You have chosen a poetic name, you’ll have to explain that some time.

Over here you are in a community of fellow sufferers indeed. We all care for each other, share information and try to have a good time.

During the day others will welcome your arrival here.
Take a look around and mingling in the discussions is the best way to get comfortable, they are all very friendly.

There may be people who will claim that they are the sane ones over here, don’t get carried away by that. 

Cheers,
Caroline.

[Fred]

Hello flecksable_flyer  to Psoriasis Club.

I couldn't agree more with you about psoriatic arthritis denting your life, but like you I'm almost in remission thanks to Bimzelx. I lasted around 3.5 years on Cosentyx but I'm the same and eventually the bio's stop working so well, I think I've tried them all now so I'm hoping Bimzelx will last longer.

I see you have followed Psoriasis Club on Bluesky, I have followed you back. 

Oh and I'm the only sensible one around here and you can often find me lurking in the members only bar [Group Specific] hope to see you around.

Regards.

Fred.

---

*If you want to know when there is a reply to your thread see here: Notification of new threads and posts

[flecksable_flyer]

Hello Flecksable_flyer,

Welcome to Psoriasisclub.
You have chosen a poetic name, you’ll have to explain that some time.

Over here you are in a community of fellow sufferers indeed. We all care for each other, share information and try to have a good time.

During the day others will welcome your arrival here.
Take a look around and mingling in the discussions is the best way to get comfortable, they are all very friendly.

There may be people who will claim that they are the sane ones over here, don’t get carried away by that. 

Cheers,
Caroline.

Flecksable Flyer was the name of my German Shorthaired Pointer, Flecks for short. She was found by an internet friend running through traffic on the interstate, and she took her to the nearest vet hoping to find her home. I had just recently lost my last Giant Schnauzer (I used to show them), and when I heard that her home hadn't been found, I took her in so I could find her a good home. It just happened to be with us. 

My kids were in dog obedience 4-H, and I was a volunteer leader. I got permission to train her with the 2nd year and up kids. The next year they asked me if I would like to train in agility. I didn't know anything about it, but that never stopped me before. They suggested a trainer, and I started learning literally a week ahead of the kids that spring (I had to complete an obedience course before I started agility).

Flecks absolutely loved it. I had to use very small hand movements or she would run wildly through the course, and once jumped over the table by the short fence around the ring! Sometimes, the hand movements were so small, she'd stop in front of a jump and face me waiting to be told what to do. If they turn away from the jump, it's a refusal penalty, so I had to figure out how to get her over the jump without turning. I'd ask her to jump, but instead of swinging her butt to face away from the jump, she would just jump flat-footed and sideways over the jump! Thus she earned the name Flecksable Flyer.

When I became disabled, I found out I could use my own dog as a service dog, and by then she'd had four years of obedience, three years of agility, and had gone on several vacations with us. I modified some of her commands, added new ones, bought her a specialized harness for mobility, and she became my "cane." I lost her in 2009 to a brain tumor, but she never once failed me as a working dog.

I should fit in here perfectly. I'm definitely not sane myself. Just point me to the other crazy people, and things should work out fine. 

[flecksable_flyer]

Hello flecksable_flyer  to Psoriasis Club.

I couldn't agree more with you about psoriatic arthritis denting your life, but like you I'm almost in remission thanks to Bimzelx. I lasted around 3.5 years on Cosentyx but I'm the same and eventually the bio's stop working so well, I think I've tried them all now so I'm hoping Bimzelx will last longer.

I see you have followed Psoriasis Club on Bluesky, I have followed you back. 

Oh and I'm the only sensible one around here and you can often find me lurking in the members only bar [Group Specific] hope to see you around.

Regards.

Fred.

---

*If you want to know when there is a reply to your thread see here: Notification of new threads and posts

I saw you followed me back. Thank you! It's so nice to be gone from Twitter (I'll never call it X!). So far it's been nothing but nice at BlueSky and that makes life so much easier. It was getting pretty weird and wacky with Musk's Mess. 

I'm looking forward to having fun here. Thanks so much for your nice reply.

Flecks

[Fred]

I saw you followed me back. Thank you! It's so nice to be gone from Twitter (I'll never call it X!). So far it's been nothing but nice at BlueSky and that makes life so much easier. It was getting pretty weird and wacky with Musk's Mess. 

I'm looking forward to having fun here. Thanks so much for your nice reply.

Flecks

I've also followed you with my own account FlakyFred

*If you want I can change your username here to "Flecks" if you prefer.

[Kat]

Welcome!

Glad Cosentyx helped you and you seem to be able to stay on top of things as best you can.

This is a super friendly group that is always helpful and supportive with quite a few dog lovers as well . I'm happy you found us!

Kat

[flecksable_flyer]

I saw you followed me back. Thank you! It's so nice to be gone from Twitter (I'll never call it X!). So far it's been nothing but nice at BlueSky and that makes life so much easier. It was getting pretty weird and wacky with Musk's Mess. 

I'm looking forward to having fun here. Thanks so much for your nice reply.

Flecks

I've also followed you with my own account FlakyFred

*If you want I can change your username here to "Flecks" if you prefer.

flecksable_flyer is fine.

[flecksable_flyer]

Welcome!

Glad Cosentyx helped you and you seem to be able to stay on top of things as best you can.

This is a super friendly group that is always helpful and supportive with quite a few dog lovers as well  . I'm happy you found us!

Kat

So far, Cosentyx has done the best for me. I usually have gotten relief with either the psoriasis or the arthritis, but not both. If I do get both, it's not as effective. I've crossed what fingers I could that it keeps working.

Flecks

[Caroline]

Hello Flecksable_flyer,

Welcome to Psoriasisclub.
You have chosen a poetic name, you’ll have to explain that some time.

Over here you are in a community of fellow sufferers indeed. We all care for each other, share information and try to have a good time.

During the day others will welcome your arrival here.
Take a look around and mingling in the discussions is the best way to get comfortable, they are all very friendly.

There may be people who will claim that they are the sane ones over here, don’t get carried away by that. 

Cheers,
Caroline.

Flecksable Flyer was the name of my German Shorthaired Pointer, Flecks for short. She was found by an internet friend running through traffic on the interstate, and she took her to the nearest vet hoping to find her home. I had just recently lost my last Giant Schnauzer (I used to show them), and when I heard that her home hadn't been found, I took her in so I could find her a good home. It just happened to be with us. 

My kids were in dog obedience 4-H, and I was a volunteer leader. I got permission to train her with the 2nd year and up kids. The next year they asked me if I would like to train in agility. I didn't know anything about it, but that never stopped me before. They suggested a trainer, and I started learning literally a week ahead of the kids that spring (I had to complete an obedience course before I started agility).

Flecks absolutely loved it. I had to use very small hand movements or she would run wildly through the course, and once jumped over the table by the short fence around the ring! Sometimes, the hand movements were so small, she'd stop in front of a jump and face me waiting to be told what to do. If they turn away from the jump, it's a refusal penalty, so I had to figure out how to get her over the jump without turning. I'd ask her to jump, but instead of swinging her butt to face away from the jump, she would just jump flat-footed and sideways over the jump! Thus she earned the name Flecksable Flyer.

When I became disabled, I found out I could use my own dog as a service dog, and by then she'd had four years of obedience, three years of agility, and had gone on several vacations with us. I modified some of her commands, added new ones, bought her a specialized harness for mobility, and she became my "cane." I lost her in 2009 to a brain tumor, but she never once failed me as a working dog.

I should fit in here perfectly. I'm definitely not sane myself. Just point me to the other crazy people, and things should work out fine. 

Thanks for the nice explanation Flecks.
Your dog has meant a lot for you, joy and help, that is clear to me.
How are you dealing with your disabilities now? Do you have another dog? Or a robot? Or other help?

Caroline.