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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Ilumetri for psoriatic arthritis Fred's journey

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Ilumetri for psoriatic arthritis Fred's journey
Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,403
Threads: 80
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 8
Treatment: Skyrizi and Clobetasol Topical
#71
Sun-30-01-2022, 13:21 PM
(Sun-30-01-2022, 11:42 AM)Fred Wrote:
(Sun-30-01-2022, 06:58 AM)KatT Wrote: Oooh!!!  Might get 100% clearance and very little arthritis  Clap

(Sun-30-01-2022, 07:04 AM)jiml Wrote: Great to read it's working well Fred hopefully it will give long term relief  Thumb

Thank you both, I was told it works better after this dose so fingers crossed.  Thumb

Crossing my fingers for you as well Fred!
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 65,428
Threads: 3,788
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 3
PQOLS: 3
Treatment: Bimzelx / Coconut Oil
#72
Sun-30-01-2022, 13:27 PM
(Sun-30-01-2022, 13:21 PM)Kat Wrote:
(Sun-30-01-2022, 11:42 AM)Fred Wrote:
(Sun-30-01-2022, 06:58 AM)KatT Wrote: Oooh!!!  Might get 100% clearance and very little arthritis  Clap

(Sun-30-01-2022, 07:04 AM)jiml Wrote: Great to read it's working well Fred hopefully it will give long term relief  Thumb

Thank you both, I was told it works better after this dose so fingers crossed.  Thumb

Crossing my fingers for you as well Fred!

Thank you Kat. Thumb
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 25,797
Threads: 111
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#73
Sun-30-01-2022, 14:23 PM
s50
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 65,428
Threads: 3,788
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 3
PQOLS: 3
Treatment: Bimzelx / Coconut Oil
#74
Sun-30-01-2022, 14:26 PM
(Sun-30-01-2022, 14:23 PM)Caroline Wrote: s50

s55
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 65,428
Threads: 3,788
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 3
PQOLS: 3
Treatment: Bimzelx / Coconut Oil
#75
Sat-05-02-2022, 13:18 PM
Note for reference. Having a bad psoriatic arthritis flare today, neck, shoulders, arms, left wrist and most knuckles are really bad. Angry

Psoriatic arthritis score up from 3 to 16
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Forest Walker Offline
100 + Member I'd Rather Be Roller Skating

100 + Member I Just Cant Stop !
Posts: 8,640
Threads: 108
Joined: Aug 2021
Gender: Female
Location: Northern Washington State
Treatment: Humira, Moisturizers, Triamcinolonoe Acetonide
#76
Sat-05-02-2022, 14:24 PM
(Sat-05-02-2022, 13:18 PM)Fred Wrote: Note for reference. Having a bad psoriatic arthritis flare today, neck, shoulders, arms, left wrist and most knuckles are really bad.  Angry

Psoriatic arthritis score up from 3 to 16

So painful.  I'm really sorry to read this.  I hope it's only temporary and that your pain is gone soon.  It must be hard to move.  Damn.  I'm sorry.
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Forest Walker Offline
100 + Member I'd Rather Be Roller Skating

100 + Member I Just Cant Stop !
Posts: 8,640
Threads: 108
Joined: Aug 2021
Gender: Female
Location: Northern Washington State
Treatment: Humira, Moisturizers, Triamcinolonoe Acetonide
#77
Sat-05-02-2022, 14:26 PM
Do they ever prescribe oral prednisone to ease the inflammation in sudden flare ups?  I'm thinking a one-week prescription with a high dosage start and a quick taper off?
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 24,789
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#78
Sat-05-02-2022, 16:20 PM
Sorry about that Fred and it seemed that it was going well . Just hope that it's a glitch and will go back to as it was.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 65,428
Threads: 3,788
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 3
PQOLS: 3
Treatment: Bimzelx / Coconut Oil
#79
Sat-05-02-2022, 17:08 PM
(Sat-05-02-2022, 14:24 PM)Forest Walker Wrote: So painful.  I'm really sorry to read this.  I hope it's only temporary and that your pain is gone soon.  It must be hard to move.  Damn.  I'm sorry.

Nooooooooo don't say sorry FW, I'll get over it.  Yep

(Sat-05-02-2022, 14:26 PM)Forest Walker Wrote: Do they ever prescribe oral prednisone to ease the inflammation in sudden flare ups?  I'm thinking a one-week prescription with a high dosage start and a quick taper off?

I don't know to be honest, but I wouldn't take it if they did. It's only a flare, it will get better.

(Sat-05-02-2022, 16:20 PM)D Foster Wrote: Sorry about that Fred and it seemed that it was going well . Just hope that it's a glitch and will go back to as it was.

Yes I'm thinking it's just one of those things, Mrs Fred has Osteoarthritis and she said it was worse today.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 65,428
Threads: 3,788
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 3
PQOLS: 3
Treatment: Bimzelx / Coconut Oil
#80
Sat-05-02-2022, 22:16 PM
For reference: Eight hours later and things are easing a little.
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