Fumaderm and hormone injections

[jiml]

Hi Jim,

No, "scary" is taking prescribed methotrexate. The method described seems simple, safe and predictable. Thank you Biogen!

Cheers,

Bill

Well done I admire your courage, with such an undertaking but as Caroline and I think you have said DMF cannot be patented. So it's win win for the brave . But anyone that takes your route would still need their bloods monitored

[jiml]

Talking about blood monitoring I just got back from the doctors for another matter and asked for my mid July results and was happy with the outcome this is what I've written in my journal


I have been on 2 120mg tablets of Fumaderm for the last 6 weeks to see if I can persuade my lymphocytes to get back into normal range ( between 1-3) not going badly it's actually increased from the June low of 0.67 to the current 0.88 a move in the right direction. But I have noticed a couple of spots appearing where previously I was clear, I have dabbed some dermovate
on them and it seems to be making them behave........ I just feel I'm on the edge of a flare I feel an odd tingling sensation on my skin which makes me think.... Don't reduce any further in fact if the next results are over 1.0 I will be pushing for an increase .

[Bill]

Good to see a turnaround for you, Jim. One thing about DMF is that after the first few months, everything happens more slowly, both in increase and decline. The only time I had a flare was when I cut the drug entirely, and even then it took about four weeks before things got uncomfortable.

Cheers,

Bill

[jiml]

Good to see a turnaround for you, Jim. One thing about DMF is that after the first few months, everything happens more slowly, both in increase and decline. The only time I had a flare was when I cut the drug entirely, and even then it took about four weeks before things got uncomfortable.

Cheers,

Bill

Thanks Bill I've just had some more bloods but they don't give me the results unless I ask for them . I will know about the ones I've just had by the end of next week which should be slightly better.
I have a dermatology appointment at the end of the month for a review so may learn something new but I doubt it, all still working but I think am at the lowest I dare go with the tablets,

How are you doing is it working well for you? and do you know your lymphocyte levels and kidney and liver function?
And how's the weather down under, we are just starting to get warm weather as our summer is underway, we are getting temperatures up to 28degrees c. Here with high humidity ( sweaty weather)
Good to hear from you have a great evening, I'm just off for a mid morning coffee break
Jim

[Bill]

Hi Jim,

My PASI has been stable since I changed the dosage, but my arthritis has improved, so I think that the disease is still declining. I tested this by taking about 200g of skim milk powder in under 24 hours. The last time I did this my disease was active and I got a painful and restrictive polyarthropathy. This time I only have a bit of spinal stiffness. I will get a blood test soon. I have a suspicion that the white cell suppression is less with less frequent dosing, so it would be nice to confirm this.

The weather here has been very pleasant and sunny. Winters in Brisbane are generally much better than summers, apart from being too cold for swimming.

Cheers,

Bill

[jiml]

Hi Jim,

My PASI has been stable since I changed the dosage, but my arthritis has improved, so I think that the disease is still declining. I tested this by taking about 200g of skim milk powder in under 24 hours. The last time I did this my disease was active and I got a painful and restrictive polyarthropathy. This time I only have a bit of spinal stiffness. I will get a blood test soon. I have a suspicion that the white cell suppression is less with less frequent dosing, so it would be nice to confirm this.

The weather here has been very pleasant and sunny. Winters in Brisbane are generally much better than summers, apart from being too cold for swimming.

Cheers,

Bill

That's an interesting test you have devised to see if the disease is still active, you certainly put yourself through the mill , but I suppose anything is better than the psoriasis coming back ,
Enjoy your winter our seas rarely get warm enough to enjoy swimming in the sea, although I do do it in the summer as I feel it's good for the psoriasis
Your posts are always mmmmm interesting.
Your very good health
Jim

[Caroline]

Just a bit to make you both jealous.
On the beach now. Swimming in the sea.

[jiml]

Just a bit to make you both jealous.
On the beach now. Swimming in the sea.

Oh Caroline I'm green with envy
But enjoy yourself

[jiml]

Is the sea cold? In the Netherlands ?

[Caroline]

Is the sea cold? In the Netherlands ?

No, not at all. It has a very nice temperature. Probably because the quite warm summer we have had up to now.