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Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
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Psoriatic arthritis and Raynaud`s

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Psoriatic arthritis and Raynaud`s
KatT Offline
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#1
Wed-16-10-2019, 02:44 AM
Hi,

Are you experiencing Raynaud`s disease/phenomenon and if so, what did your doctor recommend or prescribe?

What is Raynaud's

Raynaud's disease causes some areas of your body — such as your fingers and toes — to feel numb and cold in response to cold temperatures or stress. In Raynaud's disease, smaller arteries that supply blood to your skin narrow, limiting blood circulation to affected areas.

Symptoms can include:
  • Cold fingers or toes

  • Color changes in your skin in response to cold or stress

  • Numb, prickly feeling or stinging pain upon warming or stress relief
During an attack of Raynaud's, affected areas of your skin usually first turn white. Then, they often turn blue and feel cold and numb. As you warm and circulation improves, the affected areas may turn red, throb, tingle or swell.

Raynaud's most commonly affects your fingers and toes however, it can also affect other areas of your body, such as your nose, lips, ears and even nipples. After warming, it can take 15 minutes for normal blood flow to return to the area.


There are two types:

1. Primary Raynaud: Also called Raynaud's disease, this most common form isn't the result of an associated medical condition. It can be so mild that many people with primary Raynaud's don't seek treatment. And it can resolve on its own.

2. Secondary Raynaud:  Also called Raynaud's phenomenon, this form is caused by an underlying problem. Although secondary Raynaud's is less common than the primary form, it tends to be more serious.  Signs and symptoms of secondary Raynaud's usually appear around age 40, later than they do for primary Raynaud's.

Secondary Raynaud`s can be caused by:
  • Connective tissue diseases. Most people who have a rare disease that leads to hardening and scarring of the skin (scleroderma) have Raynaud's.

  • Other diseases that increase the risk of Raynaud's include lupus and arthritis.

  • Diseases of the arteries. These include a buildup of plaques in blood vessels that feed the heart (atherosclerosis), a disorder in which the blood vessels of the hands and feet become inflamed (Buerger's disease), and a type of high blood pressure that affects the arteries of the lungs (primary pulmonary hypertension).

  • Carpal tunnel syndrome. This condition involves pressure on a major nerve to your hand, producing numbness and pain in the hand that can make the hand more susceptible to cold temperatures.

  • Repetitive action or vibration. Typing, playing piano or doing similar movements for long periods and operating vibrating tools, such as jackhammers, can lead to overuse injuries.

  • Smoking. Smoking constricts blood vessels.

  • Injuries to the hands or feet

If Secondary Raynaud is severe and can cause lead to tissue damage (ulcers, gangrene)



I've been experiencing Raynaud`s for a few years now, and all after the psoriatic arthritis started. My fingers turn white and then blueish/purple when blood flows back.  This happens every day, multiple times per day during the fall and winter.  I also sometimes feel my toes go numb but never checked if they were white as I am usually at work when this happens.  

My rheumatologist won`t prescribe anything unless there is tissue damage.   In other words, until he sees dead tissue (gangrene)! 
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jiml Offline
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#2
Wed-16-10-2019, 09:36 AM
That's very interesting to read Katt, it's something I will look out for, is there treatment they can give for it? Seems a bit late to start treating it when bits start  dying

Not something I have noticed in myself but my wife has dead fingers that turn White when the temperature drops and it is painful when the circulation comes back. I am taking her to her renal clinic later today I'll ask the doctor about it then
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Fred Offline
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#3
Wed-16-10-2019, 10:23 AM
Not something I have experience, but I did find this that John had posted: Reynaud's and Psoriasis so maybe he will have some input.
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Caroline Offline
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#4
Wed-16-10-2019, 17:49 PM
Sweems to me that a regular DMF-flush, might help a bit, as this is the contrary of the Raynaud symptoms.
Just an idea.
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KatT Offline Author
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#5
Thu-17-10-2019, 04:28 AM
there are treatments available to help dilate the blood vessels and promote circulation:

calcium channel blockers - ie. Afeditab CR, Norvasc, etc
vasodilators - ie. Cozaar, Viagra, Revatio, Prozac, etc

There is also nerve surgery .... no thanks
and chemical injections like Botox....again, no thanks

As for the DMF flush, looked for information and found a bit on the drug itself but still don`t quite know what a DMF flush is???
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Caroline Offline
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#6
Thu-17-10-2019, 06:49 AM
(Thu-17-10-2019, 04:28 AM)KatT Wrote: there are treatments available to help dilate the blood vessels and promote circulation:

calcium channel blockers - ie. Afeditab CR, Norvasc, etc
vasodilators - ie. Cozaar, Viagra, Revatio, Prozac, etc

There is also nerve surgery .... no thanks
and chemical injections like Botox....again, no thanks

As for the DMF flush, looked for information and found a bit on the drug itself but still don`t quite know what a DMF flush is???

It is a side effect of DMF. Specifically if you are not used to it, then when taking it, after a number of hours most  users get a flush.
It’s a tintling sensation as if thousands of little needles a sticking you. It starts at the top of your head and from there it spreads over your whole body (or can spread) and you turn completely red, way worse than when you blush Blush . All your veins also the tiny ones are being flushed through.
I secondhand heard from someone who had meunieres, the ear and dizziness problem, unsolvable. Then he also got Psoriasis and started with DMF and he told me magically his meunieres disappeared and the only logical reason is because of the fact the flushed cleared up his hearing organs.
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Fred Offline
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#7
Thu-17-10-2019, 10:27 AM
(Thu-17-10-2019, 06:49 AM)Caroline Wrote:
(Thu-17-10-2019, 04:28 AM)KatT Wrote: there are treatments available to help dilate the blood vessels and promote circulation:

calcium channel blockers - ie. Afeditab CR, Norvasc, etc
vasodilators - ie. Cozaar, Viagra, Revatio, Prozac, etc

There is also nerve surgery .... no thanks
and chemical injections like Botox....again, no thanks

As for the DMF flush, looked for information and found a bit on the drug itself but still don`t quite know what a DMF flush is???

It is a side effect of DMF. Specifically if you are not used to it, then when taking it, after a number of hours most  users get a flush.
It’s a tintling sensation as if thousands of little needles a sticking you. It starts at the top of your head and from there it spreads over your whole body (or can spread) and you turn completely red, way worse than when you blush Blush . All your veins also the tiny ones are being flushed through.
I secondhand heard from someone who had meunieres, the ear and dizziness problem, unsolvable. Then he also got Psoriasis and started with DMF and he told me magically his meunieres disappeared and the only logical reason is because of the fact the flushed cleared up his hearing organs.

Lots of information about DMF here:

Dimethylfumarates and Psoriasis

Fumaderm

Skilarence

Bill's pure dimethylfumarate thread

*But I'm not sure of it's available on prescription in Canada.
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JohnB Offline
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#8
Thu-17-10-2019, 20:27 PM
Hi KatT
Yep Fred is right I do have some experience of the Raynaud's blight. I have had it on and off since my early teens. I don't think its bad enough to bother with any treatment though. Mine is manageable if not predictable. Two identical days, one day I may have an attack the other I don't. It never makes sense Confused

When I get an attack, I have to let it run until two fingers have blanched, then I run my wrist under a stream of warm water for a few minutes until it subsides. I don't get bothered again that day.

John
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KatT Offline Author
100 + Member I Just Cant Stop !

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Treatment: Simponi + hydroxychloroquine + MTX
#9
Fri-18-10-2019, 02:23 AM
Thanks Caroline and Fred.  Will read the threads but I don't think it is available here.  Not sure I should take more drugs.  I'm already taking two just for the psoriasis and PSA + naproxen 

I do the same as you John when I have an attack it's just that in the cold weather, it happens at least three times a day.  I ended up at the clinic once because my whole right hand got affected and turned red and was hurting for a few days.
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Fred Offline
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#10
Fri-18-10-2019, 11:49 AM
(Fri-18-10-2019, 02:23 AM)KatT Wrote: Thanks Caroline and Fred.  Will read the threads but I don't think it is available here.  Not sure I should take more drugs.  I'm already taking two just for the psoriasis and PSA + naproxen 

Even if it was available I don't think you should take DMF whilst on Cosentyx anyway. But maybe the DMF gang know more.
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