Posts: 16
Threads: 1
Joined: Apr 2015
Gender: Male
Location: Florida
Treatment: Everything
Happy 2018 all. I just had another round of Cosentyx right before the new year.
Things are going well, still 99.9% clear! Considering I have server plaque and pustular psoriasis with greater than 10% coverage of my body. The one piece of advice I can give you is take your dosage at the same time every 4 weeks, do not forget. I notice that when I forget and take it 3 days later I find my psoriasis seems to begin peeking back out.
Posts: 71,236
Threads: 4,131
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
Happy and healthy new year too you to.
Great to hear it's still doing well for you. I've not been so lucky where the psoriasis is concerned, so I'm now trying 3 weeks between shots.
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
Happy new year to you, thanks for the update, it’s interesting you say that it’s important not to go over time with your shot of cosentyx. Something I’ll bear in mind should I ever get as far as cosentyx.
Great that it’s working well for you after so long on it. It’s nice to read of continued success
Posts: 16
Threads: 1
Joined: Apr 2015
Gender: Male
Location: Florida
Treatment: Everything
So here I am 2.5 years into my Cosenytx journey and all is well.
No side effects that I have to report.. No out breaks of psoriasis, I still continue to have it in my scalp however this only appears about 5 days before I am due for my shot. Once I get the shot the next day its is gone...
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
I'm glad to hear that its worked so well for you for two and a half years, long may it continue
and thank you for updating and giving others on Cosentyx hope for such a successful outcome....Long may it last
Posts: 71,236
Threads: 4,131
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
Good to see you around again Plaque32092 and thank you for updating your thread.
I am so pleased to hear Cosentyx is still working for you after 2.5 years. I'm finding it to be a great treatment for psoriatic arthritis but unfortunately not so good for the psoriasis. I have recently moved to 3 weeks between shots, but it doesn't look like it is going to help.
Long may it work for you, we are all different and reading your feedback about the treatment I'm sure will help others.
Posts: 15
Threads: 2
Joined: Dec 2018
Gender: Female
Location: California, USA
Treatment: Phototherapy
Hi Plaque32092!
I just joined the Psoriasis club. So I am newbie, searching around looking for information. Your journey is so inspiring to me!!! I can' t tell you how happy I am to hear that you are 99.9% clear!!!
I have plaque psoriasis all over my legs, arms, back, head. Just Miserable. Often I can't sleep well. I am sure you know - as everyone on this site suffers.
I am currently in light therapy - but without any success. I am so fair skinned that as soon as I get up to a more healing level, I either burn or have a bad reaction.
So my doctor has prescribed Cosentyx. I have been scared about the suppressing my immune system etc. But I am just so fed up with this disease! I live in California, in the Santa Cruz mountains and my husband and I are very active like you.
My insurance company says they will approve it no problem and the drug company called yesterday and told me they would provide the copay card so I would have no out of pocket expenses for this treatment.
Your story, brings tears to my eyes and gives me hope!!
Thank-you so much for sharing your journey!!
Hawklight - aka Tricia
Posts: 15
Threads: 2
Joined: Dec 2018
Gender: Female
Location: California, USA
Treatment: Phototherapy
One question - have you had any side effects to the Cosentyx?
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