Stelara diary

[Grizzly Bear]

See, told you it takes time to work spotty

Keep at it and let stelara work it's miracle, ok

[Spotless]

So 13 weeks in on Stelara and the magic week number 12 when they said will be the week they can tell whether Stelara is doing its job or not. 

Had my first follow up at the Dermatologist this week and PASI score is a good 0.9!!! What an improvement things have been moving along well. Skins mostly clear besides a few spots but nothing to stress about. My arthritis is easing but still not 100% however Ive decided not to take any more drugs and power though the slight pain. I'm hoping it will improve.

I'd like to take this opportunity to say thank you for everyone who read my journey during this last flare and all your support to help me keep positive and reassure me that things will improve. It was definitely a hard time for me and I wish no one needs to go through the pain of arthritic psoriasis. It is a terrible chronic disorder. For those who are living in countries where you can't get funding for treatment I feel sad and angry that there isn't enough support for people who really need it. I count myself blessed to be able to receive medical treatment here in the UK with little cost and live my life psoriasis free with the treatment that I need. I wish there is more we can do as a community to help each other. 

I'm due my next injection in 3 weeks and I look forward to a stable treatment on Stelara that will continue to do it's job.

All the best my friends and I'll keep you updated as my treatment continues. 

Finally Spotless.

[Fred]

Thank you for the update. It's nice when people come back to say how things are going, and your input could help others.

I'm a big fan of Stelara as it gave me my life back. It also did help with psoriatic arthritis, but after more than 6 years of use it could no longer keep the psoriatic arthritis at bay. (But we are all different, and I did have bad psoriatic arthritis)

Yes I agree it is a shame that some countries can't get the funding, but there are Biosimilars now coming out with a lower cost which should help. However all countries have different health care systems, for example in the USA they have to pay insurance, you in the UK have to pay a little for the prescription, myself in France pay nothing. So it's not possible to make the Bio's available to all.

All I can say is enjoy what you have, and long may it last.

[jiml]

Great news Spotless, at last you are living up to your name   what great news that is ...I hope it keeps you clear for many years ...I know the relief and pleasure you must feel to be virtually pain free and spotless.

I'm glad the club has been helpful keeping you positive, and I agree it is a shame that effective treatments aren't given to all sufferers, and agree that treatment in the NHS can be very good although not everyone has the same experience as you, or me

I wish you good luck and look forward to reading more of your journey  
Jim

[D Foster]

Great news exspotty see I said it would work ,you take care and chill out. Dave

[artemie]

Good to hear it's working for you! Long may it work =]

A thanks to you for the update. You're sure helping me because I had my first Stelera shot the 2th of october and since I'm keeping things at bay with Enstillar, good to hear how it progresses for you.

   ArteMie

[JohnB]

It is so encouraging when people report a successful treatment. Thanks for updating Spotless. I look forward to hearing of your continuing remission on Stellara.

[Spotless]

Thank you for all your well wishes. It feels good to be on the mend even though the arthritis isn’t quite there yet. I’m definitely so much better than I was over the summer. 

Big group hug for all the love and support!

Spotless.

[jiml]

Big back spotless it’s great to read how well it’s working, and nice to see that your posts are helping others

[Caroline]

All the best and stay clear, Spotless !!