Health Boards
Sun-23-07-2017, 21:30 PM
So here goes I thought I'll start a new Thread so I can track my new treatment on treating my psoriasis with a biological drug called Stelara. It's my third biological treatment. I was previously on Ebrel which lasted 2 years and Humira which lasted 3 years. I hope his diary will help others who is starting Stelara or thinking of starting Stelara.
My psoriasis is serve... At its worst it's everywhere taking over at least 80% of my body, when they start to go on my hands and feet that's when I know it's a bad flare and eventually on my face but this has only happened a few times, thank goodness. I don't usually get psoriasis on my hands and feet or my face. It only happen a when I get a serious flare.
So this recent trigger which has taken me off humira to Stelara has been rather bad. But I'm lucky it hasn't started on my face so this isn't the worst it's been. Though having psoriasis on my hands and feet have been a pain and I salute anyone who suffers from this. It's not pretty.
Starting Stelara wasn't easy I had gone to see my Dermo noticing that my psoriasis had started to come back Humira wasn't working anyone and my psoriasis was starting to appear on my legs. I had been pretty much 100% clear in Humira for 3 fabulous years. I was told that Humira isn't working anymore and I was to start Stelara which I agreed to. We did all the paper work and I was assigned to a nurse. She told me it would take 2 weeks to process. I went home and waited. During this time my psoriasis decided to come in vengeance it came up hard and fast and it decided to give me arthritis along with it. OMG I did not know pain until my joints stiffed up and I could not walk or move. I went to the GP and was prescribed Naproxen which made walking bearable. 2 weeks went by and I still hadn't heard from the drug company about delivery of Stelara and nurse appointment to inject me I followed up with my assigned nurse who chased up the drugs for me and planned delivery. A lady called to arrange delivery and told me the earliest the drug would be delivered is 5 days from now and then it would take another 5 days for a nurse to come for my first injection. I broke down and cried. I had been off humira for 3 weeks at this point and my psoriasis was getting worst by the day.
Let me tell you how important it is to have a good dermatology team I called my nurse who has been with through me with countless flares and knows my skin well. Within the hour she had the delivery date escalated and a nurse to come do my injection the next day.
I had my injection 3 days ago, it was painless and I have no side effects and in fact I think I already see some improvement. My psoriasis is less red and not as raised. It still not great but as least it looks like its calming itself down.
I hope that my journey here will help others who are about to take Stelara or newly taking Stelara and that we can experience this together and get better together.
Spotless.
My psoriasis is serve... At its worst it's everywhere taking over at least 80% of my body, when they start to go on my hands and feet that's when I know it's a bad flare and eventually on my face but this has only happened a few times, thank goodness. I don't usually get psoriasis on my hands and feet or my face. It only happen a when I get a serious flare.
So this recent trigger which has taken me off humira to Stelara has been rather bad. But I'm lucky it hasn't started on my face so this isn't the worst it's been. Though having psoriasis on my hands and feet have been a pain and I salute anyone who suffers from this. It's not pretty.
Starting Stelara wasn't easy I had gone to see my Dermo noticing that my psoriasis had started to come back Humira wasn't working anyone and my psoriasis was starting to appear on my legs. I had been pretty much 100% clear in Humira for 3 fabulous years. I was told that Humira isn't working anymore and I was to start Stelara which I agreed to. We did all the paper work and I was assigned to a nurse. She told me it would take 2 weeks to process. I went home and waited. During this time my psoriasis decided to come in vengeance it came up hard and fast and it decided to give me arthritis along with it. OMG I did not know pain until my joints stiffed up and I could not walk or move. I went to the GP and was prescribed Naproxen which made walking bearable. 2 weeks went by and I still hadn't heard from the drug company about delivery of Stelara and nurse appointment to inject me I followed up with my assigned nurse who chased up the drugs for me and planned delivery. A lady called to arrange delivery and told me the earliest the drug would be delivered is 5 days from now and then it would take another 5 days for a nurse to come for my first injection. I broke down and cried. I had been off humira for 3 weeks at this point and my psoriasis was getting worst by the day.
Let me tell you how important it is to have a good dermatology team I called my nurse who has been with through me with countless flares and knows my skin well. Within the hour she had the delivery date escalated and a nurse to come do my injection the next day.
I had my injection 3 days ago, it was painless and I have no side effects and in fact I think I already see some improvement. My psoriasis is less red and not as raised. It still not great but as least it looks like its calming itself down.
I hope that my journey here will help others who are about to take Stelara or newly taking Stelara and that we can experience this together and get better together.
Spotless.
Spotty, imixflam was brilliant but I couldn't take the side effects. Had I been OK with the side effects, I could have continued with imixflam and be totally P free. Alas, it wasn't to be.