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Hi, new here, and so needing people who understand

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Hi, new here, and so needing people who understand
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#11
Fri-19-05-2017, 12:33 PM
I wholeheartedly agree with all the above comments and would recommend you get to a good dermatologist who should treat you with one of the drugs mentioned in the above posts ....the risks as has been said are there but are usually reversible if the treatment is stopped ...so I would say, don't let the fear of side effects stop you having a better life ....if you have a drug that doesn't work then keep looking there will be one that will give you a normal ....or near normal life again ..be brave and remember all these drugs have been trialled and wouldn't be given if the risk was high

Good luck ......oh and thank you for saying how much you like the site, we enjoy it as well Big Grin .....I hope to read more from you soon
Jim

By the way a great way to stay up to date with the club is to subscribe to our free monthly newsletter it's packed with interesting articles and comes out at the start of each month to subscribe click on this link Groups and click join the group Thumb
Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#12
Fri-19-05-2017, 14:13 PM
Angela, have no fear, GB is here Whistle

I'm the psoriasis clubs raving loony s29

Once you frequent our site here, I'll teach you how to bake Jell-O Thumb

Would you like to know the recipe for fried lettuce sandwiches Angela ? tong


On a serious note, you probably won't find a better psoriasis site on planet earth than ours for information about our conditions.

We have member's from all around the world on here sharing their stories. Thumb

So, if you want to sit down and fire some questions that you may have, don't hesitate to ask Bigarm

GB GB
KyPrincess Offline
I'm a little flakey

100 + Member I Just Cant Stop !
Posts: 408
Threads: 9
Joined: Jan 2012
Gender: Female
Location: Danville, Kentucky
Treatment: Triamcinolone Acetonide Cream, Methotrexate
#13
Mon-22-05-2017, 02:50 AM
Hi Angela, Welcome to the club.
Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#14
Mon-22-05-2017, 13:33 PM
Welcome Angela! Sorry for being late but life has been a bit busy for me lately.

Indeed once you have psoriasis it is life changing, as Jim said it even affects the clothing we wear! I remember going on vacation a couple years back and the grandkids were wanting to play laser tag. I walked in and saw how all the "white" was glowing due to the blacklights and decided to wait for them outside as I was afraid I had scales that would "glow"

There is a lot of treatments available and the great part about being here and that members are willing to share what worked and didn't work for them. I agree that a lot of them are scary. My treatment was UV and Acitretin which worked but I'm still wasn't fond of taking something that said it could damage a fetus and not to give blood for 5 years - I think it was - until after stopping treatment. Even though I'm past the having kids part of my life, it was like if it can be that damaging then what the heck am I really taking here! So once I cleared up (although my scalp has never totally cleared) I came off the Acitretin and so far, so good.

Moisturizing helps with the flaking and dryness but it doesn't make it go away.

Glad you found your way here! Smile
dyorke Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 182
Threads: 4
Joined: Apr 2016
Gender: Female
Location: UK
Treatment: Acitretin
#15
Tue-23-05-2017, 12:44 PM
Hi Angela

welcome to the Club - here you will find  a great bunch of fellow sufferers happy to talk to you and discuss waht works for us
I hope you find the site very useful..  Welcome
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,184
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#16
Tue-23-05-2017, 14:33 PM
Hi Angie , welcome to the best site this side of the universe , there is more information about psoriasis on here than anywhere I know . The site is populated by inmates who are friendly , most are barmy including GB but Fred has done a fantastic job with Jim in the rear gunners position . There are no con merchants trying to sell expensive rubbish and if you ask a question it will be answered by people who have the same problems not ill informed health workers.
Take care and have a good look around. Dave

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