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Cosentyx for psoriatic arthritis Fred's journey

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Cosentyx for psoriatic arthritis Fred's journey
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,183
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#151
Thu-02-02-2017, 17:19 PM
Thanks Fred for the advice, I will have to decide what to do as it's sat in the fridge waiting for me. I suppose that the Dermatologist may get a bit upset if I don't use several thousands of pounds of Stelara and just throw it away , I know that I would if I was him.
I still feel really ill and now my daughter is having problems again health wise .
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#152
Thu-02-02-2017, 17:24 PM
(Thu-02-02-2017, 17:19 PM)D Foster Wrote: Thanks Fred for the advice, I will have to decide what to do as it's sat in the fridge waiting for me.  I suppose that the Dermatologist may get a bit upset if I don't use several thousands of pounds of Stelara and just throw it away , I know that I would if I was him.
I still feel really ill and now my daughter is having problems again health wise .

They may take it back if it's not been unopened. Or the hospital may be able to use it. Could be worth a phone call to see.

Sorry to hear your daughter is having problems again. Send her my thoughts.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#153
Sun-19-02-2017, 15:00 PM
Time for a quick update.

20 weeks in and it's still going very well, in fact it seems to be getting better as time goes on. I've had a lot of days with no feeling of psoriatic arthritis, and even on damp days (those used to be the worse for me) I would say my score only went up to about a 3. Certainly not enough to stop me doing things.

I can still feel the psoriatic arthritis if I'm just sitting around or when I wake up, but it's mild and soon wears off once I start moving around. I no longer wake up with that locked up feeling and I'm now up to walking 4 Km without any problems.

I'm a lot more mobile than I was on Stelara and feeling a lot more active, this in turn is making me feel happier and life is a lot better than it was before I started on Cosentyx.

Smile
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,183
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#154
Sun-19-02-2017, 15:22 PM
I have taken my Stelara hopefully for the last time and I will be changing to Cosentyx on my next appointment , I just hope that I get the same results as you Fred'
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#155
Sun-19-02-2017, 15:28 PM
(Sun-19-02-2017, 15:00 PM)Fred Wrote: Time for a quick update.

20 weeks in and it's still going very well, in fact it seems to be getting better as time goes on. I've had a lot of days with no feeling of psoriatic arthritis, and even on damp days (those used to be the worse for me) I would say my score only went up to about a 3. Certainly not enough to stop me doing things.

I can still feel the psoriatic arthritis if I'm just sitting around or when I wake up, but it's mild and soon wears off once I start moving around. I no longer wake up with that locked up feeling and I'm now up to walking 4 Km without any problems.

I'm a lot more mobile than I was on Stelara and feeling a lot more active, this in turn is making me feel happier and life is a lot better than it was before I started on Cosentyx.

Smile

Thats great news 20 weeks in......Im so glad it has had such a positive effect on you and has done so much better than Stelara ever did, good as it was you have demonstrated a swift increase in the ability to carry out tasks, and I can sense your enthusiasm for life has certainly seems to have improved  Thumb  Clap
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#156
Sun-19-02-2017, 15:36 PM
@Dave I'm sure you will notice a huge difference.

@Jim Yes I've been amazed at how fast it has helped the psoriatic arthritis.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#157
Sun-19-02-2017, 15:40 PM
(Sun-19-02-2017, 15:36 PM)Fred Wrote: @Dave I'm sure you will notice a huge difference.

@Jim Yes I've been amazed at how fast it has helped the psoriatic arthritis.

long may it last Fred
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Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#158
Sun-19-02-2017, 18:47 PM
(Sun-19-02-2017, 15:40 PM)jiml Wrote:
(Sun-19-02-2017, 15:36 PM)Fred Wrote: @Dave I'm sure you will notice a huge difference.

@Jim Yes I've been amazed at how fast it has helped the psoriatic arthritis.

long may it last Fred

Agreed Thumb
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#159
Sun-19-02-2017, 21:05 PM
(Sun-19-02-2017, 18:47 PM)Kat Wrote:
(Sun-19-02-2017, 15:40 PM)jiml Wrote:
(Sun-19-02-2017, 15:36 PM)Fred Wrote: @Dave I'm sure you will notice a huge difference.

@Jim Yes I've been amazed at how fast it has helped the psoriatic arthritis.

long may it last Fred

Agreed  Thumb

Thank you Kat. Smile
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,520
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#160
Sun-19-02-2017, 21:12 PM
(Sun-19-02-2017, 15:00 PM)Fred Wrote: Time for a quick update.

20 weeks in and it's still going very well, in fact it seems to be getting better as time goes on. I've had a lot of days with no feeling of psoriatic arthritis, and even on damp days (those used to be the worse for me) I would say my score only went up to about a 3. Certainly not enough to stop me doing things.

I can still feel the psoriatic arthritis if I'm just sitting around or when I wake up, but it's mild and soon wears off once I start moving around. I no longer wake up with that locked up feeling and I'm now up to walking 4 Km without any problems.

I'm a lot more mobile than I was on Stelara and feeling a lot more active, this in turn is making me feel happier and life is a lot better than it was before I started on Cosentyx.

Smile

If you are on 3 you are about on my level Five, and indeed damp days do have their effects. But I can walk much further than you Tongue , and dance and cycle. Great that your locked feeling is now gone when standing up. That must be a great relief for you.
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