Cosentyx for psoriatic arthritis Fred's journey

[Fred]

Just a note for future reference. No diarrhoea or stomach problems, so it must have just been a coincidence last time.

Does it knock your restistance like Stelara or MTX if so I have found that it doesn't take a lot to upset your stomach, pick up a bug or two in something like cream yogurt or mayonnaise and you have a problem.

I've never had a problem with the bio's in that respect. The methotrexate used to make me as sick as a parrot, but with the bio's no.

We have recently both had a head cold, but I was no worse than Mrs Fred. I never have a flu jab as I prefer my body to fight it, and a lot of people have told me they still get the flu anyway.

They do say Bio's can weaken your immune system, but I've not noticed any problems.

[Fred]

Short update:

Psoriasis Score down from 2 to 1

And now for the best bit ever.

Psoriatic Arthritis Score down from 2 to 0

Yep you read it right. For the first time in too many years to remember I have No feeling of any psoriatic arthritis today.

That may change tomorrow, but damn I feel good.

Cosentyx has been worth it even for this one day.

[jiml]

Wow Fred that is so good ...is it even better than your early days on Stelara..

It's great to read that you have no pain today long may it be that way

[Fred]

Wow Fred that is so good ...is it even better than your early days on Stelara..

It's great to read that you have no pain today long may it be that way  

I don't think even my early days on Stelara where this good Jim.

I can't remember a day like this. I have no pain anywhere, I can make a fist in both hands (I'm not violent but that is something I haven't been able to do for years). My toes especially my right little one is usually like a radish and hurts most of the day and night, but today it feels and looks like a toe (yes it's a bit wobbly after years of being rubbish, but it's working). No pain in my right hand shoulder and this past few years that has been a bugger.

Mmmmmmmmmmmmmmmm I wonder if I can do a Cart Wheel  

[jiml]

Wow Fred that is so good ...is it even better than your early days on Stelara..

It's great to read that you have no pain today long may it be that way  

I don't think even my early days on Stelara where this good Jim.

I can't remember a day like this. I have no pain anywhere, I can make a fist in both hands (I'm not violent but that is something I haven't been able to do for years). My toes especially my right little one is usually like a radish and hurts most of the day and night, but today it feels and looks like a toe (yes it's a bit wobbly after years of being rubbish, but it's working). No pain in my right hand shoulder and this past few years that has been a bugger.

Mmmmmmmmmmmmmmmm I wonder if I can do a Cart Wheel  

Noooooooo cart wheels till next week

That's certainly something to celebrate .....it seems to be a great drug and seems to be targeting just the right cells ...hopefully this breakthrough will be a great benefit to other sufferers. I know reading your journal will give others a lot of hope and something worth pushing for

[Fred]

Noooooooo cart wheels till next week  

No you are right better stick to the Pogo

[Caroline]

That is really really very good Fred. I am very happy for your reaching these results !

[Fred]

That is really really very good Fred. I am very happy for your reaching these results !

Thank you Caroline. I had forgotten how nice it is to be free of pain. I don't care if it only last one day, it's a damn good feeling.

[Bill]

That is an amazing result, Fred. I am very happy for you. Why would anyone wish to avoid taking systemics for p and psa with treatments like this available?

Cheers,

Bill

[Fred]

That is an amazing result, Fred. I am very happy for you. Why would anyone wish to avoid taking systemics for p and psa with treatments like this available?

Cheers,

Bill

Thank you Bill. I'm very pleased, but I must admit I wouldn't have gone bio if I had a choice. I would recommend holding off till there is nothing else and life is so s**t that you just have to go for it.

The bio's gave me back my life and still do but in all honesty I would rather go without any treatment if I could and just muddle on through, but as you get older that becomes less of an option. So I have now embraced the bio's and I'm enjoying it.  

We have to remember the bio's are still new and yes it's looking like they are the future, but if I was say 20 years younger I would hold off if it was possible.

The bio's are the best treatment in my opinion but I class them as the last resort.

But yep I'm happy.