started in March 2002 ended in September 2015 I did have a 2 year break after 9 or 10 years.
to cut a long story short the hospital did a different blood test than normal (it has a name but I have
forgotten it ) and they found my white blood cells were so low that I was in great danger of
becoming very ill.

Phil

That is a shame Phil I'm sure Caroline, Jim and Bill will be able to comment.

Do you know what you are going onto next?

Oh and by the way do you mean 2012 not 2002?

(Tue-12-01-2016, 16:37 PM)phil Wrote: started in March 2002 ended in September 2015 I did have a 2 year break after 9 or 10 years.
to cut a long story short the hospital did a different blood test than normal (it has a name but I have
forgotten it ) and they found my white blood cells were so low that I was in great danger of
becoming very ill.

Phil

What a shame Phil but if your blood count is really low it's not worth risking
You had a long time on the treatment and are doing the right thing coming off
I hope your new treatment will give you clearance as long as the Fumaderm did, and I hope you will let us know how it works for you

(Tue-12-01-2016, 16:41 PM)Fred Wrote: That is a shame Phil I'm sure Caroline, Jim and Bill will be able to comment.

Do you know what you are going onto next?

Oh and by the way do you mean 2012 not 2002?

Sorry just re read it after Jim's post. I didn't know Fumaderm had been available in the UK that long.

Thanks Jim me too.

Fred.

back in 2002 the only clinic you could get Fumaderm
from was at Guys Hospital and there were people on it before me.

Phil

(Tue-12-01-2016, 17:14 PM)phil Wrote: Thanks Jim me too.

Fred.

back in 2002 the only clinic you could get Fumaderm
from was at Guys Hospital and there were people on it before me.

Phil

Thank you for that Phil I didn't know that.

(Tue-12-01-2016, 17:16 PM)Fred Wrote:

(Tue-12-01-2016, 17:14 PM)phil Wrote: Thanks Jim me too.

Fred.

back in 2002 the only clinic you could get Fumaderm
from was at Guys Hospital and there were people on it before me.

Phil

Thank you for that Phil I didn't know that.

I was unaware of that ... So maybe you will be able to get otezla from Guys as they seem to do different

Hi Phil,

it's a shame that you cannot continue.
Would you care to tell us what the level of your lymphocytes is?
It is always good for us don't know about that.

It is known that a to low lymphocyte count, can be very risky, you are then susceptible to the Jacob Cunningham virus.

I hope you can find a new good treatment as soon as possible.

Caroline

(Tue-12-01-2016, 17:22 PM)jiml Wrote:

(Tue-12-01-2016, 17:16 PM)Fred Wrote:

(Tue-12-01-2016, 17:14 PM)phil Wrote: Thanks Jim me too.

Fred.

back in 2002 the only clinic you could get Fumaderm
from was at Guys Hospital and there were people on it before me.

Phil

Thank you for that Phil I didn't know that.

I was unaware of that ... So maybe you will be able to get otezla from Guys as they seem to do different

yes it all happens at Guy's all down to Professer Barker.
funny thing is they told me they have very few people on Fumaderm now
and have been prescribing otezla for quite a while.

Phil

(Tue-12-01-2016, 18:24 PM)phil Wrote:

(Tue-12-01-2016, 17:22 PM)jiml Wrote:

(Tue-12-01-2016, 17:16 PM)Fred Wrote:

(Tue-12-01-2016, 17:14 PM)phil Wrote: Thanks Jim me too.

Fred.

back in 2002 the only clinic you could get Fumaderm
from was at Guys Hospital and there were people on it before me.

Phil

Thank you for that Phil I didn't know that.

I was unaware of that ... So maybe you will be able to get otezla from Guys as they seem to do different

yes it all happens at Guy's all down to Professer Barker.
funny thing is they told me they have very few people on Fumaderm now
and have been prescribing otezla for quite a while.

Phil

sounds as if he knows his psoriasis treatments