(Sat-21-11-2015, 17:36 PM)Fred Wrote:

(Sat-21-11-2015, 17:20 PM)bassman Wrote: Will do fred - 4 weeks and stop, and maybe leave it for a couple of months. May even not need it again,, who knows  

You could be lucky.

I always keep a tube of Dovobet as its the only thing that can help on the rare occasion I get a flare up between my toes, I put it on every other day for a week and it seems to work. But that's me, and it's not the recommended way of using it and it has thinned the skin between my toes.

I'm not sure about Eumovate but I have found in the past it's best to slowly wean yourself off of Dovobet to avoid any problems, if you suddenly stop using it it can cause a flare.

Yes, that also a worry. Sudden withdrawal, but i'll try and be a bit more smart about it.

Good thing ..a letter came through from the hospital and my bloods are 100% ok, and now i can reduce the blood tests to either every 2 months or 3 months instead of once a month

(Sat-21-11-2015, 21:25 PM)Bill Wrote: Was the Eumovate suggested for the skin discolouration? You might want to check.

Cheers,

Bill

Yes Bill i believe it was. In the great scheme of things, the lady Dermo was probably wondering why i was concerned about such mild residual colour,
knowing and seeing people with horrendous P problems, but you can only feel your own stress and pain, so it matters not about everyone else.

It has a name, this slight residual discolour but in my case, its very mild

(Wed-09-12-2015, 16:06 PM)bassman Wrote:

(Sat-21-11-2015, 17:36 PM)Fred Wrote:

(Sat-21-11-2015, 17:20 PM)bassman Wrote: Will do fred - 4 weeks and stop, and maybe leave it for a couple of months. May even not need it again,, who knows  

You could be lucky.

I always keep a tube of Dovobet as its the only thing that can help on the rare occasion I get a flare up between my toes, I put it on every other day for a week and it seems to work. But that's me, and it's not the recommended way of using it and it has thinned the skin between my toes.

I'm not sure about Eumovate but I have found in the past it's best to slowly wean yourself off of Dovobet to avoid any problems, if you suddenly stop using it it can cause a flare.

Yes, that also a worry.  Sudden withdrawal, but i'll try and be a bit more smart about it.

Good thing ..a letter came through from the hospital and my bloods are 100%  ok, and now i can reduce the blood tests to either every 2 months or 3 months instead of once a month

Be careful reducing the blood tests Bassman. I still have mine taken monthly at my doctors surgery, it's easier to follow the trends then, and regular monthly tests will pick any changes before they get serious and dose can be adjusted accordingly

Thanks, Bassman. I just wondered because I thought that steroids were a short term anti-inflammatory. Is the residual discolouration caused by inflammation? I would be interested to know if it works.

You have had great success and have a strong constitution. You will in all likelihood become clear, but your concern with a few spots? Come on now, princesses dont have beards and wear berets do they?

Cheers,

Bill

ps I have passed the three year mark on DMF and no longer have any discolouration, but as this has not been a major concern to me I cannot tell you exactly when this happened.

(Wed-09-12-2015, 19:21 PM)jiml Wrote:

(Wed-09-12-2015, 16:06 PM)bassman Wrote:

(Sat-21-11-2015, 17:36 PM)Fred Wrote:

(Sat-21-11-2015, 17:20 PM)bassman Wrote: Will do fred - 4 weeks and stop, and maybe leave it for a couple of months. May even not need it again,, who knows  

You could be lucky.

I always keep a tube of Dovobet as its the only thing that can help on the rare occasion I get a flare up between my toes, I put it on every other day for a week and it seems to work. But that's me, and it's not the recommended way of using it and it has thinned the skin between my toes.

I'm not sure about Eumovate but I have found in the past it's best to slowly wean yourself off of Dovobet to avoid any problems, if you suddenly stop using it it can cause a flare.

Yes, that also a worry.  Sudden withdrawal, but i'll try and be a bit more smart about it.

Good thing ..a letter came through from the hospital and my bloods are 100%  ok, and now i can reduce the blood tests to either every 2 months or 3 months instead of once a month

Be careful reducing the blood tests Bassman. I still have mine taken monthly at my doctors surgery, it's easier to follow the trends then, and regular  monthly tests will pick any changes before they get serious and dose can be adjusted accordingly

The reduction in BT's was on the Dermo's advice, so i dont really see a problem, Jim

(Thu-10-12-2015, 09:51 AM)Bill Wrote: Thanks, Bassman. I just wondered because I thought that steroids were a short term anti-inflammatory. Is the residual discolouration caused by inflammation? I would be interested to know if it works.

You have had great success and have a strong constitution. You will in all likelihood become clear, but your concern with a few spots? Come on now, princesses dont have beards and wear berets do they?

Cheers,

Bill

ps I have passed the three year mark on DMF and no longer have any discolouration, but as this has not been a major concern to me I cannot tell you exactly when this happened.

Sad to say, despite everything, that its back. It seems this level of 6 per day just isnt cutting it. And she did say at the time that she would not increase the dose,
which is par for the course i guess.

As per usual, the accompanying cream, Eumovate, had done absolutely nothing, just like every cream or ointment i have been prescribed for Inverse P

I really dont know why they keep wasting money - i have told them many times over the years that they do nothing for me. Creams and ointments only seem to have any effect on Plaque P, as i have found in the past, but i no longer have Plaque. They do zero for inverse P

Disappointing, is the word that springs to mind.

My next appointment is next April and despite everyone's warnings, i'm going to insist i go back on MTX but just for a short period.

(Sun-27-12-2015, 17:25 PM)bassman Wrote:

(Wed-09-12-2015, 19:21 PM)jiml Wrote:

(Wed-09-12-2015, 16:06 PM)bassman Wrote:

(Sat-21-11-2015, 17:36 PM)Fred Wrote:

(Sat-21-11-2015, 17:20 PM)bassman Wrote: Will do fred - 4 weeks and stop, and maybe leave it for a couple of months. May even not need it again,, who knows  

You could be lucky.

I always keep a tube of Dovobet as its the only thing that can help on the rare occasion I get a flare up between my toes, I put it on every other day for a week and it seems to work. But that's me, and it's not the recommended way of using it and it has thinned the skin between my toes.

I'm not sure about Eumovate but I have found in the past it's best to slowly wean yourself off of Dovobet to avoid any problems, if you suddenly stop using it it can cause a flare.

Yes, that also a worry.  Sudden withdrawal, but i'll try and be a bit more smart about it.

Good thing ..a letter came through from the hospital and my bloods are 100%  ok, and now i can reduce the blood tests to either every 2 months or 3 months instead of once a month

Be careful reducing the blood tests Bassman. I still have mine taken monthly at my doctors surgery, it's easier to follow the trends then, and regular  monthly tests will pick any changes before they get serious and dose can be adjusted accordingly

The reduction in BT's was on the Dermo's advice, so i dont really see a problem, Jim

I'm sure your derm is confident it's not going to change suddenly, but if it was me I would be uneasy
Read the guidelines here where it mentions " laboratory monitoring "

Fumaderm leaflet

I'm sorry to hear that, Bassman. 3*240 mg started losing efficacy for me within 6 months, but my current dosage continues to work well. My experience has been that larger doses taken less frequently are more effective and keep working. Caroline's research has found similar observations. The latest thing I am trying is selenium. I eat a couple of Brazil nuts a day and apply a little selenium sulphide cream (Selsun) very sparingly (it is extremely toxic) on spots. My reasoning for using it is that selenium slow cell proliferation as a topical, and is a component of proteins involved with glutathione production. I am trying this as I found the cysteine helpful, but as the cysteine did not help you, selenium may be another dead end.

Cheers,

Bill

(Sun-27-12-2015, 17:37 PM)jiml Wrote: I'm sure your derm is confident it's not going to change suddenly, but if it was me I would be uneasy
Read the guidelines here where it mentions " laboratory monitoring "

Fumaderm leaflet

Will do Jim, thanks

(Sun-27-12-2015, 22:38 PM)Bill Wrote: I'm sorry to hear that, Bassman. 3*240 mg started losing efficacy for me within 6 months, but my current dosage continues to work well. My experience has been that larger doses taken less frequently are more effective and keep working. Caroline's research has found similar observations. The latest thing I am trying is selenium. I eat a couple of Brazil nuts a day and apply a little selenium sulphide cream (Selsun) very sparingly (it is extremely toxic) on spots. My reasoning for using it is that selenium slow cell proliferation as a topical, and is a component of proteins involved with glutathione production. I am trying this as I found the cysteine helpful, but as the cysteine did not help you, selenium may be another dead end.

Cheers,

Bill

Spookily Bill, the patches have died down again today, and i'm back to just very mild discolouration as i was before.  The only difference in the last 2 days since the big flare up, is that i started the Cysteine again, only this time, 1.5g morning and 1 .5g evening.

Also, i took an extra 2 fumaderm tabs.

Flare ups i understand, as most of us do. But not this time.  Every flare up i've had in the past, comes up within minutes, and takes months if not a year to get under control. This one, which i thought would be with me, again, for months, only lasted 2 days.  Thats unusual for me.

Makes wonder if the moisturising ointment i put on once before going to bed, was the cause.  Its called Hydromol, and was something given to me by my GP many months back. I never really used it before, because ointments seem to be useless on me, but thought i'd just give it a try.  It may have been this stuff, or it may have been utter coincidence that I applied the Hyrdomol just as a flare up was plotting to attack me.  I'll never know, since i wont be using it again, just in case

I'm interested in the Selenium though. I'll check that stuff out