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Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
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Continuing psoriasis treatment under threat of Covid-19

Please read the thread below before voting.
Poll: Will you continue your psoriasis treatment during Covid-19 threat ?
Yes I will continue
No I will stop
Undecided
[Show Results]
 
 
Pages (4): « Previous 1 2 3 4 Next »
Threaded Mode
Continuing psoriasis treatment under threat of Covid-19
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#11
Thu-19-03-2020, 21:06 PM
(Thu-19-03-2020, 21:00 PM)D Foster Wrote: I am still going to stay on my Stelara which will have to be injected on the 29th March.
I am just keeping my fingers crossed, that I will be okay , I did have a text from the supplier today out of the blue assuring me that they will do their best which is a little concerning.

I think you should look at the other way Dave. They are saying that they are on the ball. I have been in contact with Janssen the makers of Tremfya and they were very helpful.
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#12
Fri-20-03-2020, 00:09 AM
I thought more would do the poll, so far only 4 have voted
Please if you visit this thread just scroll up and choose one of the three options
Quote
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,164
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#13
Fri-20-03-2020, 00:21 AM
(Fri-20-03-2020, 00:09 AM)jiml Wrote: I thought more would do the poll, so far only 5 have voted
Please if you visit this thread just scroll up and choose one of the three options

jims right 5.
Quote
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#14
Fri-20-03-2020, 10:10 AM
I wont be doing anything differently. The short half life of DMF means that I can discontinue my drug taking at the first sign of a cold with little risk. One experimental use of DMF is to suppress the immune response to a man made virus targeting a cancer (don't think it worked, but the research may still be active).

Cheers
Quote
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,112
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#15
Fri-20-03-2020, 18:59 PM
I’ve finally had a message from healthcare at home to basically say ‘carry on unless you feel unwell’.
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#16
Fri-20-03-2020, 21:10 PM
That seems to be the general message I'm hearing regarding treatment TL and like you unless told differently I'll carry on Thumb
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 66,958
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Gender: Male
Location: France
Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#17
Fri-20-03-2020, 21:11 PM
(Fri-20-03-2020, 18:59 PM)Turnedlight Wrote: I’ve finally had a message from healthcare at home to basically say ‘carry on unless you feel unwell’.

Thank you for that TL. I have added that to this post: Covid-19 (aka Coronavirus) and psoriasis
Quote
arsenalfan13 Offline
Member


Posts: 57
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Joined: Aug 2016
Gender: Male
Location: UK
Treatment: Betnovate, Dovobet
#18
Mon-23-03-2020, 14:17 PM
We had a form to fill out passed around at work last Friday regarding the coronovirus and one of the questions was whether you suffered or had any history of the things that put you at more risk for complications from corona i.e diabetes, cancer, a weakened immune system etc.

I answered yes to this question and stated I was on methotrexate which suppresses my immune system.. in the very least I expected to be called in to the office for a chat but I haven't been.. meanwhile a colleague that suffers from diabetes (40 years old) has been sent home for atleast 2 weeks and another (60s) that has just recovered from a bout with pneumonia has been too. 

Does this seem right or should I be concerned that in the very least I haven't been spoken to? I am unsure as to how at risk I am so I am a bit baffled as to how they can make that call? Is it because I am relatively young (33) that I am not seen as being at risk?
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#19
Mon-23-03-2020, 14:54 PM
(Mon-23-03-2020, 14:17 PM)arsenalfan13 Wrote: We had a form to fill out passed around at work last Friday regarding the coronovirus and one of the questions was whether you suffered or had any history of the things that put you at more risk for complications from corona i.e diabetes, cancer, a weakened immune system etc.

I answered yes to this question and stated I was on methotrexate which suppresses my immune system.. in the very least I expected to be called in to the office for a chat but I haven't been.. meanwhile a colleague that suffers from diabetes (40 years old) has been sent home for atleast 2 weeks and another (60s) that has just recovered from a bout with pneumonia has been too. 

Does this seem right or should I be concerned that in the very least I haven't been spoken to? I am unsure as to how at risk I am so I am a bit baffled as to how they can make that call? Is it because I am relatively young (33) that I am not seen as being at risk?

My guess is they won't send you home if they need you as although Methotrexate can weaken your immune system, there is no advice on stopping it's use unless one gets the virus.

Could be worth talking to your boss and saying you are getting concerned, but I would say they are following current advice.

Covid-19 (aka Coronavirus) and psoriasis
Quote
Raxyl Offline
100 + Member living the dream

100 + Member I Just Cant Stop !
Posts: 7,384
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Joined: Nov 2017
Gender: Male
Location: Launceston, Tasmania
Psoriasis Score: 2
Treatment: Cosentyx
#20
Wed-25-03-2020, 01:18 AM
(Thu-19-03-2020, 21:00 PM)D Foster Wrote: I am still going to stay on my Stelara which will have to be injected on the 29th March.
I am just keeping my fingers crossed, that I will be okay , I did have a text from the supplier today out of the blue assuring me that they will do their best which is a little concerning.

I'll be continuing with Cosentyx, but will keep an eye out for current advice and possibly review my decision then.  I suspect I will opt to continue regardless though.
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