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Psoriasis Club › HealthHealth Boards › Psoriasis In The News v
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French guidelines to treating psoriasis

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French guidelines to treating psoriasis
D Foster Offline
“You only live once, but if you do it right, once is enough.”

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#11
Sun-24-02-2019, 23:10 PM
She definitely said to me , you are a right one you are , I think she called me by her pet name which was you righteous sod.
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Caroline Offline
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#12
Thu-28-02-2019, 18:15 PM
Still it is amazing.

Since 1985 in Germany and shortly thereafter in the Netherlands, patients have been successfully treated with DMF.... but the French experts ..... have never heard of it. Doh
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Fred Offline Author
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#13
Thu-28-02-2019, 21:10 PM
(Thu-28-02-2019, 18:15 PM)Caroline Wrote: Still it is amazing.

Since 1985 in Germany and shortly thereafter in the Netherlands, patients have been successfully treated with DMF.... but the French experts ..... have never heard of it. Doh

They have heard of it Caroline. I asked a few years ago about Fumaderm and my dermatologist said she knew all about it, I also asked later about Skilarence but she said it and any DMF probably would never be used in France.

I and she didn't know why they wouldn't be using DMF, but it's a government health department issue and not the experts (dermatologists) that treat the French psoriasis patients.
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jiml Offline
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#14
Thu-28-02-2019, 21:17 PM
(Thu-28-02-2019, 21:10 PM)Fred Wrote:
(Thu-28-02-2019, 18:15 PM)Caroline Wrote: Still it is amazing.

Since 1985 in Germany and shortly thereafter in the Netherlands, patients have been successfully treated with DMF.... but the French experts ..... have never heard of it. Doh

They have heard of it Caroline. I asked a few years ago about Fumaderm and my dermatologist said she knew all about it, I also asked later about Skilarence but she said it and any DMF probably would never be used in France.

I and she didn't know why they wouldn't be using DMF, but it's a government health department issue and not the experts (dermatologists) that treat the French psoriasis patients.

It's not surprising as it's not just the French that don't prescribe it but most of the rest of the world including the USA don't or won't use it
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Fred Offline Author
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#15
Thu-28-02-2019, 21:23 PM
(Thu-28-02-2019, 21:17 PM)jiml Wrote:
(Thu-28-02-2019, 21:10 PM)Fred Wrote:
(Thu-28-02-2019, 18:15 PM)Caroline Wrote: Still it is amazing.

Since 1985 in Germany and shortly thereafter in the Netherlands, patients have been successfully treated with DMF.... but the French experts ..... have never heard of it. Doh

They have heard of it Caroline. I asked a few years ago about Fumaderm and my dermatologist said she knew all about it, I also asked later about Skilarence but she said it and any DMF probably would never be used in France.

I and she didn't know why they wouldn't be using DMF, but it's a government health department issue and not the experts (dermatologists) that treat the French psoriasis patients.

It's not surprising as it's not just the French that don't prescribe it but most of the rest of the world including the USA don't or won't use it

Good point. I'm sure they have their reasons, but we may never know.

All I know is that I'm reasonably happy with the French protocol for treating psoriasis. It's not perfect and people still have to jump through hoops and they still push poison Methotrexate, but my experience is that they do asses each patient well and will soon move you on if needed. Maybe by not having DMF it gives the French patient one less hoop tp jump through. Rolleyes
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Caroline Offline
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#16
Thu-28-02-2019, 21:44 PM
(Thu-28-02-2019, 21:23 PM)Fred Wrote:
(Thu-28-02-2019, 21:17 PM)jiml Wrote:
(Thu-28-02-2019, 21:10 PM)Fred Wrote:
(Thu-28-02-2019, 18:15 PM)Caroline Wrote: Still it is amazing.

Since 1985 in Germany and shortly thereafter in the Netherlands, patients have been successfully treated with DMF.... but the French experts ..... have never heard of it. Doh

They have heard of it Caroline. I asked a few years ago about Fumaderm and my dermatologist said she knew all about it, I also asked later about Skilarence but she said it and any DMF probably would never be used in France.

I and she didn't know why they wouldn't be using DMF, but it's a government health department issue and not the experts (dermatologists) that treat the French psoriasis patients.

It's not surprising as it's not just the French that don't prescribe it but most of the rest of the world including the USA don't or won't use it

Good point. I'm sure they have their reasons, but we may never know.

All I know is that I'm reasonably happy with the French protocol for treating psoriasis. It's not perfect and people still have to jump through hoops and they still push poison Methotrexate, but my experience is that they do asses each patient well and will soon move you on if needed. Maybe by not having DMF it gives the French patient one less hoop tp jump through.  Rolleyes

Oh, it is easy why they won’t use it.
It is effective and extremely cheap. Ask Bill. Big Grin
No one can earn something with it, a bio is much more lucrative.

But never mind. We will see in future.
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Bill Offline
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#17
Fri-01-03-2019, 01:33 AM (This post was last modified: Fri-01-03-2019, 01:33 AM by Bill. Edited 1 time in total.)
"I'm sure they have their reasons, but we may never know."

For a safe and effective therapy you should know the reasons for it being excluded, Fred. It's called transparency. The range of approved therapies should be determined by a committee of dermatologists, not by the occult machinations of bureaucrats. Angry
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Fred Offline Author
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#18
Fri-01-03-2019, 12:41 PM
(Fri-01-03-2019, 01:33 AM)Bill Wrote: "I'm sure they have their reasons, but we may never know."

For a safe and effective therapy you should know the reasons for it being excluded, Fred. It's called transparency. The range of approved therapies should be determined by a committee of dermatologists, not by the occult machinations of bureaucrats. Angry

I'm not interested in using it Bill so didin't push the issue. Smile
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Caroline Offline
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#19
Fri-01-03-2019, 13:50 PM
(Fri-01-03-2019, 12:41 PM)Fred Wrote:
(Fri-01-03-2019, 01:33 AM)Bill Wrote: "I'm sure they have their reasons, but we may never know."

For a safe and effective therapy you should know the reasons for it being excluded, Fred. It's called transparency. The range of approved therapies should be determined by a committee of dermatologists, not by the occult machinations of bureaucrats. Angry

I'm not interested in using it Bill so didin't push the issue.  Smile

We know that.... Tongue

But others may be interested. It remains the cheapest and a very well working medication, with very low risk, a lot of extra's, but in the incarnation of Skilarence an obvious blunder on the intestine cramps area.
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Fred Offline Author
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#20
Fri-01-03-2019, 21:30 PM
(Fri-01-03-2019, 13:50 PM)Caroline Wrote:
(Fri-01-03-2019, 12:41 PM)Fred Wrote:
(Fri-01-03-2019, 01:33 AM)Bill Wrote: "I'm sure they have their reasons, but we may never know."

For a safe and effective therapy you should know the reasons for it being excluded, Fred. It's called transparency. The range of approved therapies should be determined by a committee of dermatologists, not by the occult machinations of bureaucrats. Angry

I'm not interested in using it Bill so didin't push the issue.  Smile

We know that....  Tongue

But others may be interested. It remains the cheapest and a very well working medication, with very low risk, a lot of extra's, but in the incarnation of Skilarence an obvious blunder on the intestine cramps area.

I'll not get into a debate about the use of DMF in France as it's going a bit off topic. France have made their decision and this thread is intended to give people an insight of how their system works. It is about what is available and not about what is not or should be.  Zip
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